Trials advice

  • 4 replies
  • 86 subscribers
  • 552 views

Hi all

Haven't been around as much as usual, side effects of cumulative chemo have knocked me for 6 and resorted to going back to bed, unheard of for me. Last Chemo cycle planned for 25th March. In addition typing is nigh on impossible due to PN. When I sent information about it to other group members never for one moment would have it effect me and so badly. Doing a bra up is hopeless, pulling socks on is a trial and I've got beautifully bruised toes where I've stubbed them where I can't feel them! Heh-ho

Anyway I digress, happens a lot nowadays!

I'm seeing my Oncologist on Tuesday. I know he wants me to take break after these 6 cycles of chemo and we'll talk about the way forward. My tumours might have shrunk but they'll be back at some time. I'm going to ask him about trials, I've already sent an e-mail about Dostarlimab and I'll ask about what Lucki's Mum is having - Atezolizumab. Can I ask what others of you might be trialling so I can ask him about them. I always ask permission to record our conversation so if I find out any useful info I'll pass it on.

I think I'll be having a CT scan shortly after cycle 6 so it'd be lovely to report the little b***ers have taken a holiday from me for a break too.

Hugs to all, Barb xx

  • Hi Barb, sorry to hear you haven’t been feeling too good lately hope you are starting to feel better.  As you know I am a bit behind you on chemo and my fourth one knocked me a little more then the others have.  I’m not sure what my next step is after chemo either think it depends on how these lymph nodes are doing.  I hope all goes well with your oncologist and I hope you don’t mind but I may possibly have some questions in the future about trials. X

  • Hi . Thanks, yes of course I'll let you know anything useful and feel free to ask away.

    Hugs, Barb xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • MrsBJH

    Hi Barb

    As you know I am taking immunotherapy that has already completed a drugs trial. The information they give you about side effects is really scary but don't be put off. Because it's a trial you would be very closely monitored.  The treatment is not a harsh as chemotherapy (oncologist told me this)

    Good luck,  Pat xx

  • Bless you Barb! Bet you're glad of the break after your last chemo on the 25th. Hopefully the scan will show some positivity which means your suffering hasn't been in vain. Take it easy and rest as much as you can .hugs x

    Madesp