Trials

Hi Lindy67

May I please ask what type of cancer did you have and what stage and grades was it when diagnosed.  Also did you have a hysterectomy with any lymph nodes removed.

Thanks z

Diagnosed with stage 4 womb cancer. This was then downgraded to stage 3a when they were certain that nodules on my lungs weren't cancerous. I had a full hysterectomy, ovaries, cervix etc removed. It wasn't mentioned whether any lymph nodes were removed but they are all clear at the moment.  I have cancerous cells in the soft tissue and a vaginal vault mass

Hi Lindy67. I'll be interested in any replies you receive on trials as I'm now on palliative care.

Hugs, Barb xx

Hi Barb

I too am on palliative care. I had last chemo 3rd Oct and top up of radiotherapy in Nov. My oncologist looked at trials for me as I am not currently on treatment and feeling well.  I have a face to face appointment at Guys on 21st Feb and a video consultation with Addenbrooks on 2nd March. My oncologist wants me to go on a immunotherapy trial but neither hospitals have said what type of trial it is. She has told me what to ask so next week I will start preparing.  I will keep you updated. Keep strong

Found this on NHS site Feb 2022:

Trials of Dostarlimab will give those most in need improved quality of life.

“A big thank you to NHS England, the National Institute for Health and Care Excellence (NICE) and GlaxoSmithKline (GSK) who have made this treatment a reality”.

Previous treatment options for patients whose endometrial cancer returned after surgery, radiotherapy and any hormonal treatment, would have had to undergo an invasive and tiring programme of chemotherapy, which for these patients would only have a limited benefit.

Dostarlimab has less side effects than current clinical options and offers a considerable improvement in quality of life and is also less burdensome for patients due to the short treatment time.

Endometrial or womb cancer is the fourth most common cancer among women in the UK.

Hi

found this on NHS site

Trials Dostarlimab will give those most in need improved quality of life.

“A big thank you to NHS England, the National Institute for Health and Care Excellence (NICE) and GlaxoSmithKline (GSK) who have made this treatment a reality”.

Previous treatment options for patients whose endometrial cancer returned after surgery, radiotherapy and any hormonal treatment, would have had to undergo an invasive and tiring programme of chemotherapy, which for these patients would only have a limited benefit.

Dostarlimab has less side effects than current clinical options and offers a considerable improvement in quality of life and is also less burdensome for patients due to the short treatment time.

Endometrial or womb cancer is the fourth most common cancer among women in the UK.

I read about this in the daily mail. So good to see new options for our type of cancer. I took a pic of the article to ask my oncologist about it

Hi I was very interested in Dostarlimub, but I thought if it was a hormonal cancer you weren’t able too be included in the trial

Update. I went to guys as planned to discuss if going on a trial would be an option.  The lovely oncologist that I saw recommended me to have immunotherapy treatment.  There is one drug that goes in intravenously and a daily tablet. This therapy has already been through trials and was approved for use. Its frightening to be told about the numerous side effects and damage it could cause. Chemo is no longer shrinking my vaginal vault mass so I have to take my chances with this. My first treatment is tomorrow 7th March

Hi Lindy67. Good luck for tomorrow, hope it all goes well, come back and let us know how it went when you feel like it.

Big hugs, Barb xx