Hello x

FormerMember
FormerMember
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Im Samantha 

Im 46 from north London,  love my cat and hamster , nit alot of family ot friends due to disability anf mental health.  

have very few family members left and fewer friends, mainly because i have been so unwell with my mental health, chronic fatigue   lumbar spine issues aswell as fatigue and these "womens problems"

About a year ago i was complaining to my gp about the amount of intermittent bleeding and long heavy periods i was getting.. despite having a mirena coil in at the time.. so had a ultrasound in clinic .. they said i have a large fibroid inside my womb and referred me over to gyne at hospital... they booked me in for a mri and took a biopsy then the next two appointments over 2 months were a waste of time because the hospital where i had the open mri (because im a fluffy girl) hadnt sent the slides so they said they woukd chase them up and have a virtual clinic/book me in once theyve seen it amd discussed ... the consultant told me "your fibroid wont kill you but surgery will" and said he thought i should have injections to shrink it or possibly embolisation but that all depends on radiologist opinion ... a month later - just 2 days ago they called me at lunchtime to ask if i coukd come in for 2pm so i did and they said hey had looked at the mri and werent sure if the fibroid is necrotic or i have endemetrial cancer,  then took me in another room for a second  aspirational biopsy.. it hurt the first time but oh my did i scream this was worse but they said they needed a much better sample and also gave me blood tests , i went back to see the dr and she said something about a ct scan being booked for me but it was a bit of a blur i was so upset... then she said they will call me the moment they have the results... does it really take 2 weeks? :-/

Another huge worry for me is my chronic fatigue ive moaned to my gp loads of times and he's just referred me to be assessed for m.e/cfs... not once did i think to tell anybody in gyne now i keep seeing tiktok videos with people saying its an early sign.. . please let me know xxx

its just been days and i cannot stop thinking about it,  worrying , and less often tearful about the "what ifs" because i dont have life insurance and no spare cash to get a prepaid funeral.. been waiting for dwp decision for pip since last year ... am at the end of my teather with everything happening. I really hope its quicker than two weeks x 

    • Everyone in here will agree that the waiting is the worst! In the grand scheme of things 2 weeks isn't long but in our position it feels like time just stands still. I'm lucky as in I've got all the procedures,scans and diagnosis behind me and I still have a 2/3 week wait for treatment to start. You have my absolute sympathy and remember your never alone in here..There's always someone around with brilliant advice and a bit of positive reassurance.Take care .. Angela xx
  • FormerMember
    FormerMember in reply to Big bang theory

    Thank you xxx

  • Hi As mentioned the waiting is soul destroying as nothing speeds anything up it's just be patient! I would say do not consult Dr Google or watch Tiktok videos, you'll scare yourself silly and a lot of google stuff is out of date. Your team are experts and will get the best treatment plan sorted out for you.

    You're not alone, we're all here to support you either at the start, in the middle or at the end of this roller coaster ride of emotions.

    Give the Macmillan support helpline a call, (number shown below) they should be able to help with some financial advice but take the pre-paid funeral plans out of the equation you won't need that my love.

    Keep on at your GP about your chronic fatigue, there must be a reason for it. One thing I've learned is to be persistent and basically a pain in the a**e if necessary. I have to say where I live in Lincolnshire I can't fault the treatment I've received despite things going a bit wrong (read my bio - and update your own to give a few more details about yourself - copy and paste this your post here)

    Come back and let us know how things go, someone's always around to answer.

    Sending welcoming hugs, Barb xx


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  • FormerMember
    FormerMember in reply to MrsBJH

    Thankyou x, I'm really trying to not search online but it's so hard not to :-s  x

  • I agree with barb! A lot of the information is old and treatment has come along way try keep yourself busy xxx