Hi i'm new and confused.
Been having lots of problems with periods to the point where I needed an ambulance as I couldnt stop bleeding. A&E sent me to gynecology where they said oh yes your here for a biopsy as they have suspicions! First I knew about anything, but went with the flow.
They took biopsy and history, told me they were checking for endometrial cancer, and I was sent home and told to wait for results. Two days later I got call asking me to come in for scans the next day, external and internal, the lady looked slightly concerned and took lots of measurements, said I would most likely need an MRI but my consultant would tell me more.
Already booked an appointment with a gp for something else so went along and asked what was going on, she knew very little other than my biopsy wasn't good enough and I would need another. She said not to worry they will sort it at the hospital.
Next appointment a week later with consultant who asked who had rereferred me and why????? I told him all of the above and he said the others have worried you, you are too young, you will be fine! I asked about MRI he said not necessary as you are young, you will be fine!! (Im 47).
He said I had a lining of 20mm and so he would have a look and he could tell me I would be fine! He has booked me in for a hysteroscopy and further biopsy.
The fact he kept saying you are young you will be fine on repeat really stuck in my head. I could clearly see on my scan notes that the lady had put malignancy of endometrial hyperplasia and she looked genuinely concerned.
He talked about further treatment options should we need to go further, but you will not need them you will be fine!!!!!!! Arrrgghhhh
Now I feel like I don't trust him or anything he does.....am left waiting for hysteroscopy appointment with no idea of when this will be.... am I over reacting here......time is ticking past and I feel he has put the brakes on a process I felt was moving swiftly without even examining me.
Sorry if I've waffled.
Hi and welcome to our spot in the Online Community. Here you'll find a lovely group of supportive ladies who have all been exactly where you are now. A possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will. We're all at the start, in the middle or the end of what can only be described as a roller-coaster ride. The ride no-one wants to get on.
I get so angry when professionals make stupid comments like you're too young. Endometrial cancer isn't reserved for post menopausal women. This is the time to get pushy, you need reassurance, not being fobbed off, demand a second opinion, I certainly would - you must have trust in your healthcare team.
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.
If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.
It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey.
Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.
You might also find this link to what to take in my overnight bag useful for if you have surgery.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00 8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .
There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.
Sending you welcoming hugs, and don't worry you haven't waffled!
Barb xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Hi Sorry for late reply, had a couple of bad days.
I'd have a chat with your GP. They refer you to the hospital who in effect take over your care. If they're not reassuring you enough the GP should be able to make some calls on your behalf and sort something out. I was so grateful the surgeon who did my hysteroscopy and failed to spot my 4 cm tumour wasn't going to do my laparoscopic hysterectomy.
I have read of people changing hospitals, especially those in London. I'm in rural Lincolnshire so don't have a lot of choice!
Form some questions from the literature you've got and be well prepared, then they'll sit up and take notice.
Sending, hugs, Barb xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
