Urine leakage

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Hi ladies

just completed chemo number 4 and for the last 2 nights I have leaked urine in bed at night. Not enough to wet the bed but enough to wet my underwear. I’ve never had this problem before. Has anyone else experienced this? Really worried about it as it has happened with no warning whatsoever

Kate xx

  • Hi Katie,

    yes it happened a couple of times to me, but not on consecutive nights. I can’t remember exactly after which chemo but it was around 4th or 5th session…I kept a diary and rattled through it to the nurse who did my blood tests every 3 weeks. I think it was because I was in such a deep sleep from the tiredness I couldn’t wake up quick enough. I reduced the amount of liquids in the evening after about 8pm and made sure my bladder was completely empty before bed, and that worked. I had a number to call my cancer centre at any time, could you ring yours to ease your worry.

    Good luck with your chemo, over half way so very well done, it worked for me and I’m all clear now ClapClapClap.

    Take care

    Sue

  • Hi Sue

    thank you so much for responding and I am so glad to hear you are through your treatment and well.

    Did you doctor ever mention stopping your chemo? It has been mentioned to me already as I have a lot of pain from the neuropathy and I am really not keen on this happening. I would like to give this fight my best shot and I feel 6 rounds of chemo is the optimum treatment in my opinion. When I had my original consultation they said 4 rounds but preferably 6 if I could tolerate it. Sorry for rambling on but this really worries me

    thank you

    Kate xx

  • Hi Kate. I agree with Sue and give your Chemo team a quick call. I myself didn't have chemo but I have noticed since my op and treatments last year that my undies are pretty damp every morning which they never used to be so I use pantyliners every night.

    Hugs, Barb xx


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  • Hi Kate,

    I was always on the plan for 6 sessions of chemotherapy, on the neuropathy issue I only really had pain  on the 3rd to 6 th day after chemo and on a scale of 1 to 10 it was about a 6. It eased off after day 6 and was ok till the next round. So I’m guessing mine was very mild compared to yours, they may be concerned about permanent nerve damage so well worth an extended conversation with them as it may be a trade off …. Blood results/scans may be telling them what is best for you …but in the main I agree with you about having the full 6, your nearly there, I found the last two ok just very tired and my recovery from the chemo day seemed to get a day longer each time I went. 
    On a positive note my eyebrows disappeared after chemo#5 but back two weeks after #6 ….hair was starting to come through 6 weeks after #6 and I stopped using wig about 8 weeks after last chemo. 
    You be kind to yourself, and I wish you the well

    keep positive , the finish is in site, I was so pleased when I rang that big bell Bell

    Sue

  • Hi Sue and Barb

    I contacted my team and they seem unconcerned and think that I was just exhausted and overloaded with fluid. My treatment day takes me away from home for approximately 10 hours and is very tiring. The positive note is that I woke without leakage during the night and went to the loo as normal so maybe they’re right. I’ll just see how it goes. 
    I’ve not lost my brows or lashes so far and still have very fine wispy baby hair under my wig. Brows are tattooed anyway lol. Great news that it may all grow back that soon Grinning.

    Aiming for the finish line now and would be extremely happy ringing the bell too 

    Kate xx