I had my total hysterectomy on the 13th of July, the leiomyosarcoma was contained within the uterus and was removed whole with no spread although there was evidence of lymphovascular space invasion. It was stage 1A, grade 2. Because sarcoma is so rare and leiomyosarcoma even more rare I was referred to the Christie hospital to see the sarcoma consultant. I went to the Christie on Tuesday and saw the (very dishy) consultant. He told me that because my cancer is so aggressive I will be monitored for the next 5-10 years but if it comes back it is usually within the first two years. I will be scanned etc every 3 months starting in November. Radio therapy and chemotherapy isn't effective with this cancer so if it does metastasise it would be palliative care.
I feel that even though I'm in remission I still can't really move on as I will still be an oncology patient. I feel absolutely exhausted physically and mentally. Deb
Hi Deborino glad to see you posted on here too, I'm sure some of the ladies will be pleased to read your post! Also pleased to read you have a very dishy consultant, so do I! Makes counting the days between consultations bearable, seriously though sadly the worries never go away. I had my op this time last year brachy ended in early November (3 sessions) About a month ago I started to experience chest pains, dismissed it as a muscle pull, eventually phoned GP who sent me for an urgent X-ray. I was convinced I'd developed secondary's and have bee in a right state all week. Today I received a text all's OK. Cried buckets, hubby dearest said I was being a drama queen - he just doesn't blooming get it!
Have you read the Life After Cancer reading material, some members have found it very helpful.
Sending hugs, Barb xx
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