Post surgery treatment

Hi Katlee,

just want to wish you lots of positive thoughts and hugs for tomorrow. I have my mri on Tuesday and my consultation with the surgeon on Wednesday to find out what will be happening to me in the next few weeks. It’s like your life isn’t your own anymore, we are just a puppet and being worked by the strings of the medical staff and professionals for the foreseeable until we are fit to work ourselves again! 
I hope you get some sleep, our minds are our enemy in times like this, whatever your plan is, I wish you strength and positivity, we will get through these times, I will be thinking of you and sending the biggest of hugs your way. Take care, love Emm x

Hi Emm

thank you for your kind words and hope all goes well with you this week too. Our lives are definitely in limbo whilst all this goes on around us, my “work life” seems like a whole other world atm.  I read your story and mine is very similar apart from the HRT part and it was after my polyp was removed I was diagnosed.

I will be thinking about you and sending you positive vibes 

Take care 

Kate xx

It's going to be a busy day tomorrow for me too.  Off to see the gynaecologist/surgeon/anaesthetist/cardiologist, again, in the hope that they will have come up with a plan to enable surgery with a too slow/too fast heart beat, or to stick to the plan for hormone treatment with lots of possible side effects.

I hope you get some sleep and that your meeting goes well tomorrow- having a treatment plan will be a good step forward. x

Hi Katl1. We're here to mop up the tears along the way as you know. Come back and share your treatment plan if you want to!

Big hugs, Barb x

Hi Skippy
I’m hoping that your appointment went well and you got favourable news. You are right it’s def good when you’ve got a plan and fingers crossed you have one too now. The not knowing is awful.

Take care

Kate xx

Wee update, appointment went as well as it could yesterday and my consultant was lovely. She took time to explain everything and then answer all my questions, although now I’ve processed her answers I’ve got some more - typical healthcare worker lol.

Ive to have 6 chemo and then 3 brachy beginning in the next week or two. She was very positive and said I’m on a curative regime and they expect me to get well.  I sat in the car and cried all the way home all over losing my hair!!! Thought I was prepared but obviously not and feel so daft as it was actually good news. 
Anyway after letting it all out I feel so much better and ready to take the next step. My eldest daughter is a hairdresser so we are going to a place she knows that does fab wigs to get me sorted out. 

Take care

Kate xx

Hi Kate,

im so glad you got through your appointment yesterday, and it sounds as though your consultant is really positive, and has a solid plan for your recovery. I’m sure you have extra questions, everything that goes through my mind has a question mark, nothing ends in a full stop! Write every question down as you think of it, no matter how small, then you don’t forget - easier said than done I know! Im sure your daughter will look after you so well, our hair will grow back, - the main thing is we don’t ever want this terrible disease to grow back, and hopefully this treatment will be the solution to make sure this is the case. Don’t ever feel daft about feeling anything Kate, the stuff that’s going round in my mind, - if anyone could listen in to it would think me unhinged! We are allowed to have daft thoughts! I keep on having what I call “my moments” when a tidal wave of emotion washes over me & I can’t help it, I know it’s coming, but can’t stop it, & my husband now says to me, I know, it’s here again! Let everything out, it’s liberating! My cousin rang me last night, & I was putting a brave face on, and she just said rant at me, cry, shout, whatever you want, and I had a good blubber. It doesn’t make the situation any better, but made me feel a bit less full of whatever this feeling is of ‘fullness’. I will be thinking of you, and send lots of hugs, love Emm x

Hi Katl1. Good to hear you've got your treatment plan. Now you're nearly on the home run, just a few more hurdles to get over!

As you mentioned wigs I went on to the Macmillan Info & Support site to find out about wigs and found out you get them free in Scotland and Wales but we have pay here in England. If you want the link for more info let me know.

Big hugs, Barb x

Hi Barb

Thank you for the info but my consultant told me that yesterday. Can’t believe you don’t get any help in England, absolutely shocking.

Ive got my head around it for the moment and keen to get moving again. 

Thanks again

Kate xx

Hi Kate. You get help if you're under 16 on pension credits and things like that but unless you're eligible for benefits zilch! Quite a shock - I didn't know that ! 

Good to read your head's in the right place!

Barb xx