Hi again
its a while since been on. After my third session of chemo (purely precautionary) I ended up in hospital for 4 days with severe back pain. Two MRI scans showed nothing to worry about ‘just another side effect of the chemo’. My consultant and I were due to have a meeting between sessions 3 and 4 to discuss how things were going. When he saw me as an inpatient he said we might need to tweak or possibly stop the chemo. We would discuss at meeting.
As I had been hospitalised after every session and side effects were piling up - breathlessness sitting still: worse osteoarthritis pain than I had ever experienced: my IBS was not coping either: limitation on being able to move with back pain: extreme tiredness; peripheral neuropathy. The list went on.
At our meeting we agreed the quality of my life was virtually non existent and that was not the purpose of the treatment which was just to ‘mop up any escaped cells there might be’. So we agreed to stop it. Also not to embark on radiotherapy because of the problems might cause my IBS (I read the Macmillan booklet “Cured but at what cost” and reading problems caused decided to ask my consultant about it). I was not suitable for brachytherapy so we are going with check ups every 4 months or so.
I was warned the side effects could be with me for quite some time. Then two weeks ago I had my three yearly breast screening and have been called back on the 18th as image unclear. This happened last time and it was a cyst which, as it was causing me no bother, we have done nothing about. I am hoping it is the same or even just an imaging problem this time. But can’t help worrying.
Hi Bonnie,
I nursed my daughter through chemo for breast cancer, and never want to do it again! So, I know exactly what you have been suffering. She did manage to get to the end, and recover, but there were times when I thought I would never get my bright, cheerful daughter back. Its the main thing I worried about when I was diagnosed.
I'm sure your other problem will be fine. My other daughter was called back once after a smear test because they couldn't get a clear view. It must happen. xxx
Hi Bonnie B. If your chemo was impacting badly on your quality of life I can understand why you would want to stop. I've read of a few other people making the decision to stop and it's been right for them. I hope the side effects don't last too long.
I did read the booklet "Cured but at what cost" and stopped halfway through - not very uplifting reading matter.
I recall I had my mammogram a few days after finishing my Brachytherapy and was in a right mental state until I got the results, fingers crossed it'll be a cyst and nothing to worry about.
Sending hugs, Barb xx
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Well I went for the repeat mammograms, ultrasound and had a biopsy as a small (14mm) tumour found. Another appointment for 30th August to discuss the results of the biopsy but seems I will probably have to have a lumpectomy followed by some chemo.
2021 is not a good year for me. January my endometrial cancer diagnosis. February my sister died of a massive bleed on the brain. My dog had to have surgery for cruciate ligament rupture. Fortunately I had a friend who could see him through that and after as, March brought my hysterectomy for my endometrial cancer. April I was recovering then May began chemotherapy with all its side effects causing frequent admissions to hospital between sessions. July consultant and I agreed to stop chemo as it was precautionary and was making my quality of life non-existent . August Still suffering side effects of chemo in particular exhaustion and then today the diagnosis above.
Looking forward to 2022 - it must be better
It is what it is. I have my niece and her family to support me as well as many good friends. My sister had breast cancer twice once requiring a mastectomy and once a lumpectomy. They were 10 year apart and she has no recurrence for the last 20 years of her life. I'm hoping for the same positive result.
Hi Bonnie,
My youngest daughter had breast cancer at age 37. She had a lumpectomy, chemo and radiotherapy, They said they would throw everything at it because of her young age. They also advised her to have her ovaries out (which she did, 2 years later), She has been fine since. It was all 7 years ago now. The chemo was the worst bit for her. She did get a split boob after the radiotherapy, but she said it was 'a walk in the park' compared to chemo. They reckoned IVF caused her problems!!!! xxxxxx
Hi Nanny Anny
As you know, things started with my endometrial cancer and we had to stop chemo because it was so detrimental to my life when cancer had been removed. I am assured this is not connected. I understand I will probably need radiotherapy but really will question chemo if it is suggested. They have no idea what caused my problems.
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