Grade 1 stage 2 uterine cancer

Hello

I’m so sorry you’re feeling like this and completely understand as I felt exactly the same.  The waiting is horrendous and every scenario takes place in your mind - most of them being bad ones.  

I was diagnosed in August 2020 and didn’t actually have my hysterectomy until December as I caught covid and was quite ill.  During that time I was absolutely convinced that my cancer would be spreading and growing, and like you I couldn’t sleep or eat.  The morning after my surgery I was told that I’d had 18 enlarged lymph nodes removed and I was terrified.  I didn’t have the histology results until 5 weeks later and was so worried all that time, but when I finally saw the oncologist I was told that none of the lymph nodes were cancerous and that my cancer was still the same stage and grade as it had been in August! 

My oncologist  told me at the start that this is a very slow growing cancer and also that it is very treatable.  Mine hadn’t grown or spread in 4 months, so I think he was right!

I know I can’t take your anxiety away, but there are so many positive stories on here and whatever happens, your medical team will know exactly how to treat you to get you well again.  Hold on to that fact and believe that you’ll be in very safe hands.

Thinking of you so much and sending hugs and strength.

Pippa xxx

Hi Hted. Take several deep breaths and try and clam down. I know exactly where you're coming from because this exact time last year I was where you are now. I received my histology results on 2nd/3rd August, met the surgeon on 20th August (2020) and here I am a year later fit and healthy. But I was the same as you lying awake looking at the ceiling thinking what if, what if!?....

Until histology is done after the hysterectomy they can't be sure what's what.

I'll be absolutely honest. I was diagnosed as Stage 1a, grade 1 and regraded after to stage 1B, grade 3. My lymph nodes were clear as was my LVSI (lymphovascular space invasion) but they did detect some malignant cells in my peritoneal wash. Removal of my womb, ovaries etc removed the cancer and 3 sessions of Brachytherapy zapped the rest.

At this time any unexpected twinge will make us think it's spreading - that's highly unlikely so don't think the worse.. It's also very treatable so be positive.

I can see someone else is probably responding as I write this so I'm sure they'll be offering the same words of support.

Big hugs your way, Barb xx

Dear Pippa, 

Thank you so much for your positive reply,  it's really helping me to put things in perspective. 

I'll try and only read the positive stories from now!

Take care. Xx

Sorry should have said calm down, not clam down - my typing is atrocious or should I say atroshus!

Barbxx

Hi Barb. Another positive reply and just what I needed.

Thank you so much. Take care.x

That made me smile! X

Hello dear Hted

Just wanted you to know that I’ll be thinking of you tomorrow.  I hope all goes really well.

Pippa xx

Good evening Pippa,  how kind and lovely of you to be thinking of me.  I really appreciate it. I am feeling nervous but also strangely calm. I'm thinking of the worst case scenario then no shocks and maybe even be reassured! Take care and God bless you.x

Whatever the outcome , remember that the teams who look after us are SO highly skilled.  They know exactly what needs to be done - and they’ll do it brilliantly.  
Be gentle with yourself and I hope you sleep tonight .xxx