Worried sick.

Hello

I’m so sorry to hear how terrified you’re feeling - we all understand what a horrible time it is when you’re waiting and you can’t help but imagine the very worst outcomes - and there is no point me telling you not to worry...  However, I can reassure you that you will be in good hands.  I live near one of the Marsden hospitals and they were always involved in the decisions about my care, even though they weren’t actually treating me.  I think all hospitals that are part of the same trust work together - and that means that the most knowledgeable people from them all are able to make decisions about what’s best for you.  

If your mass does turn out to be cancer - and it may well not - you will be so well looked after.  I had my total hysterectomy, with removal of ovaries, fallopian tubes and lymph nodes, last December and I’m fit and well now. You will get through this and everyone here will support you.  Ask all your questions and spill out all your worst fears.  We’re here to help and to listen.

Thinking of you so much

Pippa xxx

Thank you for your reassuring words.

Deb xx

Hi Deborino

As Pippa says, there is nothing suspicious when the hospital uses and MDT to discuss your case and you are in great hands.

Mine was taken to the Leeds Teaching Hospitals twice after MRI to check that the right approach was being taken at the operation stage.  I am reassured that the consultants speak to each other, it makes me feel safer as they want to get it right making sure that doctors who have seen the worst have a view of your case at an early stage to enable your team to approach it in the right way.

Gone are the days when they just open women up and take everything out with no real thought to recovery times and quality of life, this is a much more equal, thorough and humane process.

I have now stopped asking the secretary for updates, they cannot tell me and it just frightens me and steals my sleep.

Thinking of you xxx

Hi Deborino - that's what we mean by the roller-coaster ride - You spend hours willing for the phone to ring, eventually give up and phone someone to be told they can't tell you anything yet. Rest assured, you're in the best hands. Once the MDT have their meeting things move really quickly, especially now we're more out of lockdown, and before you know it you'll wonder what the fuss was about. In the meantime it's as scary as hell.

Having read your bio, I do sympathise with coping with your Mum's dementia and her husband's Alzheimer's - it does seem like you've been dealt a rubbish hand and you're not moaney - don't think that! If you want to moan, come on here and vent, we'll support you. We've honestly all experienced the fear you're going through and you're not a defeatist, just human.

Sending you the gentlest of hugs, Barb xx 

Thanks everyone for talking to me. I'm trying to play things down with my family so it's been a godsend to be able to offload to people who have been a similar experience. Deb xxx

The consultant rang me today after the regional MDT with the Christie hospital. They have told me that I have a cancerous fibroid. It doesn't seem to have spread so I am on the urgent list for a complete hysterectomy including my cervix and ovaries. I'm feeling quite calm now that there is a plan in place.

Have a lovely weekend and enjoy the sun.

That’s good that you have a plan in place. Hopefully once you’ve had the op you won’t require any further treatment