I am 61 and about 2 years ago I was diagnosed with non alcoholic cirrhosis. This came as a huge shock as I have never really been much of a drinker. It was discovered during my yearly diabetes blood tests that I was severely anaemic. From the end of August last year until boxing Day I was admitted to hospital due to eosphegeal bleeding 8 times. It was horrible and frightening. I am due to have my yearly abdominal scan this Thursday. This is to check for liver cancer. I had unexpected bleeding ten years ago and had an internal ultrasound which showed that I had lots of fibroids but I was given the all clear and nothing has happened since until now. I had finished my menopause when I was 43.
Last Tuesday I started having really bad pain in my stomach, back and into my groin. I called my GP who said to go to A and E as it could be pancreatitis which I had 11 years ago. The senior nurse practitioner said that I had blood in my urine and it was a kidney stone and sent me home with codein and told to return if things got worse. I noticed some pink stained mucus but thought it was due to the kidney stone. By 3pm I had to go back to the hospital. This time they sent me to the surgical assessment dept. I then had an CT scan at 2am as they thought it may be appendicitis. They then said that there was a cyst on my uterus and passed me on to gynae. I had an internal ultrasound and internal examination. The next day I had a biopsy and the consultant said it could be a fibroid extending outside the uterus or endometrial cancer. I will get the results in the next two weeks and have an MRI within two weeks.
I am in bits. It is going round and round my head and I can't concentrate on anything else. I thought my life was a bit rubbish before with my cirrhosis but now I feel like I have no control over it.
Hi Deborino I am so sorry you have had such a worrying time. Waiting for results is one of the worst things as so many things go through your mind. You will find a lot of supportive ladies here with a wealth of different experiences who will help support you through this and hopefully be able to answer any questions you have. Once you get your results, you will be able to take things one step at a time if need be.
Thinking of you,
Hugs, Lesley xx
Hi Deborino, sorry to hear you’ve been having such a horrible time of it. Take comfort in the fact that you are now “in the system”, as it were, and things usually happen pretty quickly. I think all of us here know how you are feeling right now. The not knowing is absolutely awful, as your imagination goes into overdrive. Once you have a diagnosis of what is wrong, and a plan for treating it, you can start dealing with the situation. Try not to worry yourself sick, impossible advice I know, maybe keeping yourself occupied will distract your brain a bit. A few treats for yourself wouldn’t go amiss either, if you feel well enough. Just hang on in there girl, and I hope your scan on Thursday goes OK. Wishing you all the luck,
Viv x
Hi, Deborino
I’m so sorry you’ve had all this worry. As women, we’re quite complex in the pelvic region and it sometimes takes the doctors a little time to narrow down the cause of the problem but, as Jigsaw says, you are now on a recognised pathway of investigation that will all take place quite quickly as this pathway is designed for rapid diagnosis. I don’t think you will have to wait long and then you will have a better idea of what you are dealing with.
I have done lots of follow-up examinations for people like you with NASH cirrhosis and I most commonly see them for years without any dramatic changes, if that’s any help.
It’s always horrid waiting for results, but the NHS pathway you are now on will not make you wait much longer.
Hang on in there - we’re willing to listen.
Gusbunxxxxxxxxx
Waiting for results can seem ages. I had to phone the Consultant ‘s Secretary to chase for mine and it turned out he had gone on holiday! Now waiting for results of biopsy after my hysterectomy. Now you are in the system things seem to not be delayed like they are saying on the news so take heart from that at least. Thinking of you!
I was booked to have an hystoscopy on Friday but they rang to cancel it on Thursday. They said that they would wait for the MRI scan results and take it from there. This made me panic as I assumed that they didn't need the hystoscopy results because the biopsy was positive. I rang the secretary and said I needed to know what the biopsy results were. The nurse rang me and said that the biopsy sample was too small to test. So why did they cancel the hystoscopy??? They will look at the MRI results and arrange a consultation to discuss the results.
I am still bleeding after 9 days. Is that normal after a biopsy ? The nurse who was with me for the biopsy said light spotting for a coupon of days. I hope you get your results back soon and don't need further treatment.
Poor you it’s so difficult when they change things. How did they get the biopsy sample if it wasn’t a hysteroscopy? I bled for about 2 weeks after mine and had terrible cramps and felt like I had cystitis with big lumps coming away. They said it was probably malignant at the time of the procedure. I had an answer machine message to say nothing significant found from the secretary. Then 2 letters in 1 day the first saying I had been discharged from the two week pathway and the second giving me a date for my hysterectomy! Confusing! I don’t even have a named nurse to go to for clarification due to covid. Then I had my mri and then hysterectomy 2 weeks ago tomorrow. Just waiting for the results but may give them a call on Tuesday just to remind them. All the letters come snail mail too very frustrating. Be gentle on yourself and if you want more information ask them. Hopefully you’ll get your mri quickly. Best of luck with it all.
They just did the biopsy in a treatment room on the ward. No anaesthetic. It was really painful. So did yours turn out to be cancer even though they told you that there was nothing significant on the biopsy? I hope you're recovering well from your hysterectomy.
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