Full Hysterectomy 22 April (all being well)

Hi wishing you the best of luck on your journey I had hysterectomy on the 30 November and I feel lots better now like you I wasn’t sleeping but that has past now! It is all a big shock at first it will eventually go to the back of your mind but will always be there the word cancer is terrifying but we will get threw all this and come out the other side xxx

Thanks Natalie. I need to get the right mindset. Xx

Hi Lizz,

Really sounds like things are moving forward for you. I am 7 weeks post operation now and feel so much better. I now sleep through the night and don’t wake up panicking in the morning.  Are you having your operation at St James’ in Leeds? That’s where I had mine. 

wishing you all the best for your operation xxx

Hi Bella yes at Jimmys. Good to hear you are on the mend.  Xxx

You are in good hands. The surgeons, anaesthetist and theatre nurses were so good. They made me feel completely at ease and I was so anxious when I got there. Xxx

This is so reassuring. Thee have been a few blips along the way, so to hear this is putting my mind at ease. I’ve managed three hours sleep tonight which is progress since diagnosis xx 

Hi Lizz

That's good to see the date's been set. We all agree it's a weight off the mind when you know something is actually going to happen even if it's not exactly something to look forward to. I started thinking in the way of the Terminator's going to get the Alien. You might even get called in earlier if they do reduce the 10 days isolation to 3 days so get that bag packed just in case (sod cleaning the cupboards out I say!) The 3 days would be sufficient for the Covid test. Mind you that's probably being reduced anyway.

Good also that you popped into Maggie's Centre. I've heard lots of good things about them. Unfortunately I live in a very rural area and there's nothing like that around here. 

It's also good to know that's where Bella had her op and the staff were great. Mind you I've found all the NHS brilliant, no matter where they've been and I've covered Louth, Lincoln, Grantham and Nottingham in my journey!

Sending you calming hugs, great you managed to get a bit more sleep. We can all empathise, staring at the ceiling in the dark trying not to cry. I actually went out and howled at the moon one night! 

Barb xx 

Hi Mrs Weasley. I'm so glad you have a plan forward now and a date for the operation. That will take a bit of anxiety from your mind. I too couldn't sleep when I was diagnosed but it does wear off eventually. A lot of worries go once the hitch hiker is out of your body and if it's early stage there's a good chance surgery will be all you need. You take care now and make sure you take it really easy after the operation. No lifting or bending or stretching reaching up.  I put everything that I was likely to need on the counter at waist height. Yes it clutters it up a bit but makes life so much easier. Anything heavy I asked my husband to do and we relied on freezer meals for the first few weeks so either batch cook or stock up. I did peel veg sitting down but some days you are so tired you can't do it as much as you want to! Listen to your body as it will tell you when you are overdoing it and be warned you will only be able to do things for a few minutes in the first few weeks but do try and keep up walking as it helps greatly in your recovery and your mind. It will only be round the garden or up to the corner and back at first but it doesn't last forever and if you had keyhole surgery recovery is usually quicker than open surgery (I had both). Just remember that you have to heal up inside though and 12 weeks is usually the norm before they advise getting back to anything properly, although I think you can drive from six weeks. It can take a year before you are completely healed up inside though as it is a major operation. You take care and God bless. Love lamb.

Thanks Lamb. I’ve had telephone pre op assessment this morning. Just waiting to find out if we are isolating from Monday or three days before. Apparently they are reassessing the criteria.I am going to be really careful and take it easy which is hard as I am a doer! But know I have to x