Womb cancer has spread due to 12 week delay due to COVID, cancer now terminal.

Hi Stacey, I am so upset and sorry to read your post, I honestly do not know what to say, I wonder if you could contact PALS to see if they could offer any help, I am sure someone on here will be along to reply to you soon, the ladies are lovely here and they will offer support and advice, I just wanted to say that although I can not begin to imagine how you feel, I just wanted to send you a virtual hug xx

Hi   and a warm welcome to the Online Community. I'm truly sorry to hear about your Mum’s diagnosis of secondary cancers. I can understand your anger when you were all quick to act upon her bleed and she was seen by the hospital within two weeks and referred for a hysterectomy.

Their intention was to operate quickly but this hateful Covid pandemic caused operations throughout the country to be cancelled which proved to be wise in most cases. My sister-in-law had COPD, developed pneumonia, was taken into hospital, contracted Coronavirus there and died a week later. Some ladies here had their operations cancelled as they were in the pre-op reception area. All this doesn't ease the anger and pain you're experiencing I can understand, but the Health Trusts had a duty of care to your Mum too and chose not to operate. All my tests, scans, hysteroscopy, hysterectomy and adjuvant treatments took place throughout lockdown across counties in my Health Trust area but scheduled treatments were stopping and starting as the influx of patients waned and increased.

You say your Mum's had her hysterectomy, is she going to have further surgery to remove the ovaries and fallopian tubes? (A BSO) She's going to have 6 months of chemo, nowadays scientific advances mean people can live with incurable cancer so don't think the worse at the moment. 

A cancer diagnosis will bring many questions, lots of confusion, stress and yes, a place to share your fears can help a lot. You may also benefit from talking with other people who are on the same type of journey. The Online Community is organised into dedicated support groups so you may want to look at joining our supportive Supporting someone with incurable cancer and Family and friends  groups as these are good places where you will connect with others making the same type of cancer support journey.

Follow the above links then choose ‘click to join' or ‘join’ when the page opens. You can then introduce yourself by putting up a ‘New Thread’ and just copy and paste the text from your first post here.... or just join in with existing discussions by clicking on 'reply'. 

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

Sending you and your Mum welcoming hugs, B xx

Dear Staceysm,

I am so sorry that your Mum, family and you are having to go through such an experience. It is devastating enough to get a diagnosis of cancer without  such a long delay for surgery with the heartbreaking news that the cancer has spread. It is totally unacceptable to have to wait  but these are exceptional times. I was diagnosed with womb cancer last year just a few days before lockdown. My consultant discussed a plan B with me of having hormone treatment if surgery was delayed. I was very lucky, I didn’t know if surgery would go ahead right up to the last minute, I was on the last surgical list before they were suspended.

It is natural to feel anger and a whole host of emotions. If you have any questions or want to make a complaint to get answers you can do this and PALS will help you. I hope that the treatment delays the progress of the disease or that your Mum goes into remission. 

Best wishes and love,

Honey

Hi,

I think what is harder, is that I work at the hospital and we did continue to operate throughout, If a patient came through A and E.  This is why the team my mum came under, told us to come to A and E if her condition worsened and the operation would become urgent and she would get her operation sooner, as an emergency.  My mum was starting to bleed more and lose big clots.  But she was never re-scanned, just normal observations and bloods done and then sent home.

Dear Staceysm, I am so sorry to hear about your Mum's ordeal. I don't know what I can say except that I am sending my very best wishes and I hope everything goes as well as possible.

Hello again. I can more understand your anger if that's what you were told to do. I'm so sorry for you and your Mum - , when you work there and put your faith in them that they know what they're doing 

Sorry, sent before finished!

You should raise the situation with PALS. In the meantime be strong for your Mum, she needs your strength at this time.

Let us know how things go, we're here for you both.

Sending big hugs, Barb xx

Hi Stacey 

There’s nothing I can say to make this situation any better. Just echo other people’s thoughts about not losing hope, and contacting PALS. Sending you lots of love x 

Dear Staceysm

I don't get on here as often as l would like so l have only just read your devastating news.

I am not surprised you are angry, you've every right to be. I don't know if it would help you at all but Macmillan's  Don't let cancer become the forgotten C campaign might help you channel such emotions.

The government needs to be held to account for how they have side lined cancer patients. Please write to your MP. It may be too late for your mum but it would help others.

I'm so sorry that you are in this position, l found the support of the ladies here invaluable after my op and going through treatment, encourage your mum to use it also. Please don't give up hope either of you x