Hi all,
apologies for the delay in getting in touch. It’s all been a bit of a mess. I had my abdominal surgery as planned last Tuesday. Late stage change to my surgeon. I ended up with two really lovely surons and anaesthetist. I had a spinal block in place before the operation which really helped with the pain post surgery. They attempted this 6 times until it was actually in place but it really wasn
too bad. I woke up in recovery and then went up onto a ward. No pain really at all that evening and didn’t get out of bed. The surgeon came the next morning and said everything had gone really well
nd requested the nurses to get me out of bed before 12 and continue morphine to see how I get on then remove catheter. I quickly realised I was not on a gynae ward but a thoracic ward and the nurses
eally didn’t know what they should have been doing with me. They removed my catheter and pain pump and 5pm and instructed me to get myself out of bed onto the chair. I did this and went completely d
zy and fainted. I had not been up for a day and a half and no longer had pain killers. I ended up back in bed for the night and was given oral pain relief. The following day (Thursday)I was in sever
pain at the top part of my incision it felt like when I stood, walked or moved it was tearing the pain was so bad. This has continued since. On the first day I ate the food I had ordered from the me
only to be told the day after by the surgeon that I should only be having a liquid diet. Everything seems to have gone so wrong. I now have been on movicol since Wednesday and have not yet opened m
bowels. I am really worried about this and what is going to happen if I don’t go. All I have been eating since is cup a soups. The hospital just about got on top of pain medication today and got me
mfortable but then the surgeon came and said my white blood cell count is 14000 which is too high so I can’t go home. I have really cried today. I’m in so much pain and so fed up. I just want to go
me. Did anyone else have a high WBC and it went down? Xx
Thank you so much for this. I am also 37. Thank you for letting me Know your daughters experience, it really helps. I was expecting to feel quite poorly for the entire time so it’s really good to hear that for part of it she felt okay before the next session.
Thanks so much xxx
Hi Bella,
Yes you will get lots of your questions answered by the oncologist as we are all different and need specific mixes of drugs to suit our individual needs, I have carboplatin and placlitaxel which are the standard drugs for mop up chemo.
The anti sickness drugs are really effective , first chemo I had the anti sickness through the drip, but on second session yesterday I took a tablet. They give me 3 further tablets to take on evening of session, then next morning, following evening. I try to eat as well and snack as often as I can and I haven’t felt sick. I took the approach of always having something in my tummy and it works for me.
No I didn’t feel unwell when you are on the drip, it’s via a cannula in your hand and that can be a bit uncomfortable going in..but the nurse said drink lots of water for 3 days prior to chemo session as it plumps your veins up and easier to get needle in.
My first session was long, they take it slow to make sure you don’t have a reaction to any of the drugs, first chemo via drip I had antihistamine,steroid, and anti sickness, then 2 chemo drugs with a line flush in between all of these and a final flush for 30 mins, went in at 11:30 cane out at 7pm...
Second chemo yesterday slightly quicker by an hour.
My chemo centre is modern, chairs are in groups of four, both times there have been wonderful ladies willing to share their experiences, and the first session I crumbled a bit, few tears and they soon got me back on track. I spent most of the time listening to them and got some fantastic tips from them.
Volunteers bring around tea, sandwiches, crisps and fruit so they feed you as well.
I keep a chemo diary now ..so I’m expecting to feel groggy and achy tomorrow and over weekend, from Monday I should pick up and feel ok...
My oncologist saw me a week before my second session to make sure I was ok, what I had experienced in case he needed to tweak the doses.. answer any questions I had ....so you are monitored all the time and I have a number to call if I need to speak to an expert out of hours, so that’s comforting.
Write the questions down as they come into your head over the next few days, so when you visit oncologist you are all prepared
take care
xxSue
Hi Sue. I just wanted to say a big thank you for writing this detailed post concerning chemo treatment. I myself am a great believer in trying to take the fear of the unknown out of cancer treatments. Hence my posts on Brachytherapy treatments culminating in the joy of discovering buzzy sex toys at the tender age of 67 - never too late to try anything.
I think it would be a good idea, with your permission, to find out if this could be reposted somewhere on the Macmillan site to help others going through the same treatment - should I make enquiries?
Sending biggest hugs, Barb xx
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