after surgery

Hi Meb70

Good to hear that you're back home. I know it's difficult but try not to overthink things. Just wait until Tuesday, then things will be clearer.

Once they've done the histology tests, forward treatment if any is needed will be arranged. The surgeons tell you what they see but it's the histology that reveals the situation.

I was the same, over the moon on Monday to be told my body was cancer free, then the next day utterly bereft to hear I still had malignant cells. I'll be totally honest, I'm now fine with it. (My tumour was 4cms, don't know if that's big or small) My brachytherapy should make me 94% clear so that's good enough for me.

I think we all think having the hysterectomy sorts it all out. Having read some other posts on here it does for some of us. For the others not, just a bit more to kick the little buggers into touch.

Take things easy, just be happy to be home. Let us know what happens, sending you gentle hugs.

Barb xx 

thanks barb- gosh, it does seem like. we all go through the same range of emtiioins ! I am not sure what a branchy thing is - like the tampon radiation? and how did they find those other malignant cells in your body?? do they just do some sort of a cancer check scan ? I can handle treatments for sure, I just dont want to die from this :(( im sure all people a=on here are pretty much identical in thinking :)))  thank u for writing me back 

Hi Meb,

Like Mrs BJH says, Just wait until Tuesday, and then they will tell you if you need more treatment. 

In my experience they will never tell you it will be fine, because there is always a doubt with cancer. I think the further you get from treatment the easier you can breathe. 2 years is good, and at 5 years you have as much chance of getting it as the general population. I'm pretty sure they treat enough people to know what the most likely treatment to stop it will be. 

I was one of the lucky ones, just needing a hysterectomy. I had all the nodes round the womb removed so they could check they were cancer free. I, also had trouble peeing after a day without the catheter, and had to stay in hospital another day. They nearly sent me out with it in, but I narrowly escaped that!!

Have a good rest now, so you can recover. xxxxxx

Hi meb70

I had the hysterectomy, removal of womb, fallopian tubes, ovaries in addition to lymph node dissection. They also did a perineal flush which means flushing the operated area with liquid and analysing what came out. That's what revealed some malignant cells. For once my hubby has been supportive, he said they removed the bag of sugar but left behind a few granules. (The malignant cells)

Yes, Brachytherapy is "tampon" radiation. From what I understand they'll insert a hollow tube in my vagina then give me a high dose radiation (HDR) zap which lasts about 7 minutes, then I go home. Just 3 treatments, consecutive Thursday's starting 28th October. That's supposedly sufficient to clear me 94% of any cancer reoccurrence which is good enough for me.

I'm the same, I don't want to die of this. Every time I've been told something unexpected I think "I'm going to beat this" but still have moments of utter despondency and cry buckets.

Take care & stay strong. Big hugs, Barb xx

hi barb- I am not sure how to "respond all" so forgive me for just targeting you! i know i need to wait to hear results and everything (my tumor is largely the regualr. kind and then part the serous kind) but STUPIDLY i just was googling "serous tumor prognosis " all I could see was that it was 5 year survival rate and really really bad. are there people on this board who have had this type of tumor. and lived a "normal" life after treatment . sorry for this , my husnabd keeps telling me to reign my anxiety in and i dont know if it is the hormones (or lack thereof) but I am spiraling and desperately trying to. keep it together . 

Woah, woah, woah lady!! No way am I expecting just to survive another 5 years! I'm going on to my 90's to 23 years to go!! Mine was a high grade serous but my oncologist had said after the brachytherapy I'll be 94% clear of any re-occurence. I'm sure there are people who have lived a normal life.

So sorry I didn't read this message last night, I tend to go off the internet after 6pm. 

Stay calm and listen to your hubby, 

Big hugs, Barb xx 

Hi Meb70, Oh hunny didn’t anyone tell you Don’t Google.? That was one of the first things my MacMillan nurse told me, she basically explained it as  Google has lots of good stuff but it also has an awful lot of scare the pants off you bad stuff. Which is why you go to your nurse,,doctor with any medical questions or on here where you can get straight, honest answers and support from people who have been there. I’m with Barb five years isn’t the end line it’s just a means by which they can assess how you are doing. I’m planning on staying around for quite some time to come and growing old disgracefully  Please help yourself by taking a deep breath and relaxing.  Try and stay positive, I know it’s not always easy but please try. I’m worried your going to send your blood pressure up and that won’t help your recovery. Listen to your Dr and hubby, and wait until Tuesday then you’ll have the whole picture.  

Sending you hugs  

Take Care

Stay Calm

Angie‍

Hi Meb,

I had to laugh at MrsBJH's post !!!!

My husband had 2 patches of cancer in his throat and they said if they had joined up it would have been classed as the worst stage - Stage 4. Yes, we had a rough 3 years. Yes, we had a few bad moments, and I had lots of doubts. But he is still here and doing most of what he ever did 14 years later. People do survive cancer. I think the media concentrates too much on those who don't!!!   xxxxxx

Had a think whilst walking the dogs this morning. I think the 5 year mention is the amount of time you'll stay under the care of your Oncologist. For the first 2 years 3 monthly checks, thereafter 6 monthly checks then you're discharged back to the care of your GP. Hubby's prostate cancer was the same, at first we thought he only had 5 more years but his Oncologist discharged him from his care after 5 years. 

Call your CNS for more clarification, she won't mind.

Funny thing is what goes round comes around, he's now my Oncologist and will be doing my brachytherapy next week. Smashing guy, he's spanish so we have a brief chat in Spanish though not medical terms.

Like Abs61 said don't Google!

Big hugs, Barb xx

woke up to this and smiled . i hope someday i will be in a good enough place mentally to give back to others the way this group has given to me . in fact, i know i will xoxox