Greetings

Hello Sarahjean, I am sorry to hear of your diagnosis and discomfort that makes you uncomfortable and unable to sit and walk.  I still have to sit on cushions, three years after my vulvectomy.  Some ladies found comfort by sitting on a rubber ring like a child’s swimming ring.  Not sure whether you have tried this.  I hope your pain management will help.  Hopefully other ladies here may have advice for you.  Please keep in touch.  Sending love.

Thank you Ex Lancashire lass .

I hope you are managing to cope and live as much life as you can .

1. My vulva has been desicrated by the radiotherapy,  burnt a hole in my vaginal wall causing a hole into my bowel which meant my bowel was secreting poo into my vagina constantly , they said I was incontinent due to the therapy,  ending up with a stoma , which is fine  , my labia has disappeared , as has the core of what my vulva used to be , a gaping hole , seeping from the internal cancer 
2. Ive tried several cushions ranging in size , price , quality , shape and no luck so far , my only position is with my legs in a v shape , commando style  
3. Are you in recovery  now Ex Lancashire lass ? I do hope so 

Hi SarahJean

So sorry to hear about what you've gone through, what a harrowing time for you.

I had my WLE for SCC on 5.3.26, plus 7 lymph nodes removed. Then I had 2 infections and a second op to remove more tissue a few weeks ago. It's not been pleasant and I'm still recovering. 

I know it's early days for me but I still can't sit and walking is painful. I sit on sofa with my legs up and in a 'V' like a frog. When I do sit I use a soft fairly level cushion and I take it with me everywhere I go. I find it more comfy to lean back in a chair and try to lift my feet up on another chair. I can't sit for long either. I always take paracetamol before I go anywhere which helps a bit.

Ive tried a travel neck cushion memory foam which helps a little, but, like you, tried many options. It's not easy. 

Hoping you recover soon.