Hi. Has anyone had there lymph nodes removed, either some or all. How did you get on. Anyone got any permanent damage. I had some removed. I feel all kinds of pain, maybe from the nerves. My right thigh feels numb in places, and my knee cap hurts. I'm also limping with the right leg. It's 6 weeks since I had my vulvectomy and removal of some lymph nodes.
Yes, I had an operation a few weeks after my vulvectomy to remove 18 lymph nodes from my pelvic area. I was fitted with suction drains and spent 2 weeks in hospital. I was then discharged home with both bottles as I was slow draining the lymph fluid. Both sides drained within a week. I still have nerve damage and can't tolerate my usual bikini pants as groin on right (operation) side very tender still. I bought some short type pants which are comfortable. This was 3 years ago in May. I was told the nerve damage may go away but may not. It can be uncomfortable at times but a small price to pay for remission so I treat it as my new normal, I don't believe we ever go back to what we were before so we just have to get on with it. We women are strong xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007