Lymp nodes

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Hi. Has anyone had there lymph nodes removed, either some or all. How did you get on. Anyone got any permanent damage. I had some removed. I feel all kinds of pain, maybe from the nerves. My right thigh feels numb in places, and my knee cap hurts. I'm also limping with the right leg. It's 6 weeks since I had my vulvectomy and removal of some lymph nodes.

  • Yes, I had an operation a few weeks after my vulvectomy to remove 18 lymph nodes from my pelvic area.  I was fitted with suction drains and spent 2 weeks in hospital.  I was then discharged home with both bottles as I was slow draining the lymph fluid.  Both sides  drained within a week.  I still have nerve damage and can't tolerate my usual bikini pants as groin on right (operation) side very tender still. I bought some short type pants which are comfortable.  This was 3 years ago in May.  I was told the nerve damage may go away but may not.  It can be uncomfortable at times but a small price to pay for remission so I treat it as my new normal, I don't believe we ever go back to what we were before so we just have to get on with it.  We women are strong xx

  • How was you with walking, either short or long. Recovery seems a while off for me, especially going back to work.