Vulva cancer with pelvic lymph nodes mets

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Hi all, just wanted to say hi. I'm a year and a half post vulva cancer treatment (chemo and radiotherapy). Can't ever be fully cancer free due to the two lymph nodes in my pelvis that it had spread to, but you know what? I'm ok. Just moved by the sea, taking it one day at a time, adjusting to the side effects, retired (I'm only 51, but when you have a poor prognosis it's really the only thing you can do to help yourself, your mental health and your tired body). I'm probably in a better place now mentally than I was two years ago when diagnosed. Looking forward to having my family with me this Christmas, then I've got things booked throughout next year so I've always got something to look forward to. I'm not talking foreign holidays or big things, but theatre trips, football matches etc. I know that it will all come back and I'll need chemo again sometime, but until then I will go out when I can, sleep or watch TV when I can't, expect nothing but enjoy everything. Take care all, and live when you can!! 

SisterAnd xx

  • Hi and a very warm welcome to the online community

    I'm not a member of this group but I noticed that no one from the group had come forward to welcome you so thought I would Slight smile

    Thanks very much for taking the time to share your experience and it's good to hear that you're in a relatively good place and planning things to look forward to.

    It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"