Hello.
Not been on for a while.
I was diagnosed in 2016 with stage 3 VC in the perineum area. Was caused by many years of undiagnosed lichen sclerosus.
I had 4 surgery’s and radiotherapy twice over 14 months and was doing ok in remission until unfortunately in May 2023 I needed a biopsy and came back as pre cancer dvin, so has my 5th surgery which also showed the cancer had returned. They got clear margins with cancer but not the dvin so now being closely monitored with 2/3 months check ups. So after nearly 7 years I find myself starting my remission again. Mentally it’s a lot harder 3rd time . Really do feel like a ticking time bomb now!
Im still raising awareness for both LS and VC.
Clare
Hi again Clare. I'm sorry to hear that you are going through this for the 3rd time. I have to discuss option of further surgery versus wait and see approach..I have a million questions for my next appointment which may help me decide. Small VC taken out - saved clitoris as only took out cancer. Think clear by 1mm? Option now to take a further 1cm margin from site but would then take out clitoris. dVin on otherside of clitoris which they would take out at same time. Lichen Schlerosus around perineum. Other option is no further surgery and wait and see. This is my current preference as having had VC, no sign in lymph nodes, there's nothing to say that if wider margin taken and dVin taken out (and clitoris) it would not come back elsewhere? Confused but hopefully clearer after appointment.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007