Hi all,
After initial diagnosis of a small slow growing vulval HPV related squamous cell carcinoma cancer back in June, I've had surgery in July which had positive margins and lymph node involvement. I started chemoradiation in September and in week 4 had an MRI scan that showed a suspicious area in my pelvis. A further CT scan showed suspicious nodules in my lungs. I'm still waiting for the PET scan results but they are convinced it is now metastatic and incurable. The cancer is growing incredibly fast. They've stopped my treatment as I've struggled to cope with the 4 rounds of weekly chemo and after 5 weeks of radiotherapy have had a good response and they want me to be as fit as possible to start 6 rounds of 3 weekly chemo either next week or the week after.
I'm in total shock how I am here and don't know what to expect. I'm 52 and have a wonderful husband and teenage daughter who are heartbroken. Because its so rare to have metastatic vulval cancer and I'm younger than the average patient there seems to be little I can cling on to for reassurance that the new chemo can keep the cancer from growing. I'm so lost and scared.
