VIN2

Hello Carol, thankyou for sharing your story. Mine is very similar to yours.  I was diagnosed with vin 2 in 2019.  I had a straight forward operation to remove the cells on that occasion.  In April this year the cells where back , this time I had wide local excision ( WLE) .  An area of vaginal wall was removed along with most of my perineum but thankfully no plastic surgery. I've also had 3 surgeries around my anus for Ain 3.  Like you I'm on immune suppressant ( methotrexate) for 10 years.  My colerectal surgeon explained although being on these can increase the chances of the cells turning cancerous he said there was only a slight increase.  I use the methotrexate to control my Psoriasis and psoratic arthritis,  without it both have flared quite badly. I'm hopefully starting it back on it next month .  I was advised to stay off it just before the surgery and until I had fully recovered.   I'm sure when you go back to see the consultant they will advise you also on whether to stop .  Sending comforting hugs and hoping your surgery goes to plan. Please keep us updated xx

Thanks for replying and good to hear I am not alone.  Unfortunately I can never come off the 3 different types is immunosuppressants I take as they are keeping me alive and I also cannot lower the dose either.  It all feels so overwhelming xx