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I had an appointment yesterday with a gynaecologist. I was referred on the 2ww. I had some symptoms that I thought were related to the menopause. My Doctor referred me because she saw a hyperpigmented rash at the entrance of my vagina and also a small...
Hello Ladies I have just been diagnosed with VAIN3 and have heard how rare it is and yet I am in that category. Mine was because I have persistent HPV16 infection for decades and even after LLETZ the smear showed low grade changes and my doctor suggested...
Hey there! I know that most people on the forum are in the UK, I am in Toronto, but reading in here it seems that the cancer pathways in healthcare are very similar. I have been in a cycle of colposcopy, biopsy and treatment for HSIL (VAIN3) for the...
Hi, I just wanted to say hello. In October 2024 I was diagnosed with malignant melanoma of the vagina. A rare cancer. I am aware of the Rare Cancer Act 2026. I was told that my cancer was extremely rare and basically there was no research and no guarantee...
Hello all. I have a history of cancer (hysterectomy plus tubes and ovaries removed in 2011), had VAIN cells removed regularly in the following years and was then diagnosed with vaginal cancer in August 2022. I had the tumour removed and commenced radiotherapy...
Hello Ladies I completed treatment for stage 3 vaginal cancer in March 2024. I underwent the Interlace course of treatment which consisted of 6 weeks of chemo, 5 weeks of radiotherapy with weekly chemo and finally 4 rounds of brachytherapy. I am now...
Hi this is my first post and am concerned about bleeding. I had a total hysterectomy in December 22 following abnormal smears and treatment. In June 23 I had a vault smear which came back abnormal. Then 2 small lumps were found in August which came back...
Hi all, looking to see if anyone has been diagnosed with malignant melanoma of the vagina that is inoperable and what the treatment was going forward, I have just been told this today and now waiting for MDT at the Beatson. No idea what to think as its...
Hello everyone, I hope you are all well, I have recently been on the two week pathway and had a complex bowel polyp removed, there was a small area of cancer but all removed and I am being monitored now. I have HPV and my smear result was severe...
Hi, my name is Debra and I'm 64 yrs old. I'm new to the group as I am a little worried. I found a lump 3 weeks ago and went to the doctors, he said it was probably a Bartholin cyst, so was given antibiotics. It wasn't painful or inflamed. Yesterday...
