Hello Ladies
I completed treatment for stage 3 vaginal cancer in March 2024. I underwent the Interlace course of treatment which consisted of 6 weeks of chemo, 5 weeks of radiotherapy with weekly chemo and finally 4 rounds of brachytherapy.
I am now in remission from cancer but have just been diagnosed with vaginal necrosis, a rare and potentially life threatening late side effect of high dose radiotherapy.
My options include close monitoring, the avoidance of infection, which is high risk, and surgery to remove the necrotic tissue. I am in constant discomfort with persistent discharge and soreness.
My question is has anyone else experienced this , what treatment did you have and if you had surgery did it help?
My oncologist has only seen 2 other cases with this condition and one of them sadly died from infection.
Thank you for any replies.
Love to all going through treatment xx
Hi Dorset Girl
Gosh, that sounds a horrible late effect from radiotherapy-I’m sorry to read this. How are you coping with the discharge and soreness?
I didn’t have it myself, and I’ve done a search in the community for any mention of it and drawn a blank I’m afraid. However, you never know who is reading the forums but not posted who may see this and respond.
It does sound like it’s a difficult condition to manage with the high risk of infection, but I wonder if you might get some information if you ask your question to one of the nurses here-
With it being rare, you may not get replies from anyone who has had treatment or surgery. Did your oncologist recommend which course of action may potentially have the better outcome-ie surgery or close monitoring?
Sarah xx
