Vain3

Hi  and a warm welcome to the online community

I'm sorry to hear that you're experiencing various side effects from using Aldera cream. I haven't used this cream myself so don't have any experience to draw on to help you. However, I noticed that your post had gone unanswered.

If you don't get any responses from other people in this group you could post your question in ask a nurse and one of the specialist cancer nurses will aim to respond within 2 working days.

When you have a minute it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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Hi Lorr21,

I have not used the cream on my vagina, but I have used on cervix after cone biopsy failed. It did not work for me and ended up having hysterectomy. I had vaginal cancer in 2014, stage1. I kept having VAIN3 for a few years before turning cancer. All I had was only laser surgery on my vagina. I do not think I had any side effect when I was getting the cream.

I hope you feel better soon,

Kuma

Hi Kuma thank you for your reply. Sorry to hear the cream was not successful for you. Did the laser treatment work for you? I had my last cream treatment last week so hopefully I start feeling better. I’ve been back to see the consultant, I have to go back in 3 months for biopsy’s. If the cells remain grade 3 pre cancerous he will just monitor every 6 months  but if they have progressed I would need an operation. I have not been offered laser therapy.  

I appreciate your reply

Donna  

Donna,

I hope the cream will work for you. No, laser did not help for me either. I had multiple times and always came back in a few months, then eventually turning cancer. I live in the USA, so the way of treatment could be a little different than UK. They would say if I have VAIN1, just watch for a couple of months, but for VAIN2 or 3 they are going to treat something and I do not feel that the cream is more common here than UK. But good thing is you really do not feel much pain or anything post surgery, because inside of vagina. I have been having pre cancer cells on my vulva now, and had also multiple times of surgery which makes me SO painful.

I hope you will not have to have surgery,

Best wishes,

Kuma

Hi Kuma. 

I’m really sorry to read that. Before my diagnosis I did not realise the cells could grow anywhere apart from the cervix. Is that classed as spreading now it’s in your vulva? Do you know what happens next for you? 

I recently asked to meet with the consultant again as I felt I had so many questions and no information was really given to me at the start of my diagnosis. I felt I was losing faith in the hospital system..  Which I feel is starting to effect my mental health as well.  He did say that research had shown that with laser treatment , the cells tend to just grow back. He also said the operation in the vagina was a last resort as they can also grow back after that and that it wasn’t a nice op to go through.  I’m hoping the cream has interrupted the growth process but it’s hard to stay positive as any cases I’ve read about it hasn’t worked. 

I now have my biopsy appointment date for the end of July which is faster than the 3 months I was told it would be. But I suppose it’s better they are seeing me faster. 

You have been going through so much, I hope you have been finding support that you will also need. Thank you again for your replies. I appreciate hearing about your experience. 

Hugs,, Donna x