VAIN 3 - Awaiting a Multi Disciplinary Meeting

Hi Vmlat and welcome to the group.

I’m sorry  to hear that you’ve been diagnosed with VAIN3 and are waiting for a treatment plan. It is very usual for patients to be discussed at a multi disciplinary team meeting, and they are not only about cancer treatments. If samples are removed during biopsies, or during treatment for abnormal cells, all of these cases are discussed at an MDT meeting where the specialists will decide on the most appropriate treatment. 

VAIN3 is the highest grade of cell abnormality, but the cells are precancerous, not cancer. CIN is definitely more common than VAIN, so there are more discussions about it in the cervical cancer forum, but it maybe be that others who are reading your post here may be able to add their experience of VAIN and treatment.

It can be helpful to add details of your tests and treatment to your profile information as it can help others replying to you. If you click on someone name, and they have completed their profile information, you will be able to read their stories. 

I had cervical cancer, so don’t have the same experience to share but I hope others will come along and post. Do you know when you’ll hear the decision from the mdt? Please keep us posted and let us know how you get on.

Sarah xx

Hi Sarah,

Thanks for your reply, I'll have a look at the profile information.

Hopefully my case will be discussed this Wednesday or next so fingers crossed not too long.

I hope you're all sorted now with the cervical cancer. 

Vicky

Hi Vicky

It will hopefully not be too long to hear back with more info depending on whether your case discussed this week or next. 

This link takes you to the help page where you can read about managing your account and profile.

My Account

I’m doing ok thank you-if you click on my name my information is there.

Sarah xx

Hi Vmlat

How did the MDM go. I had a scc tumor on the back wall of the vagina removed and a radical hysterectomy last August. For me the margins werent great and still had VAIN3 plus it had gone into a sentinel lymph node (which they had removed along with 6 other nodes that were negative). I then VMAT external beam radiotherapy and brachytherapy as an adjuvant therapy.

Since the diagnosis I've started eating much more healthily, cut out as much sugar as possible (I was a sugar addict), and I take various natural supplements.

I don't know if you've come across it but I take AHCC supplements for the HPV along with curcumin, Berberine, and Artemisinin after I did some research..I'm 9 weeks post brachytherapy so haven't had any follow up MRI scans yet (one is due in April) but the MRI scan I had in November didnt show any evidence of disease. Not sure if it would detect up VAIN3 though, hence the adjuvant radiotherapy. I know natural remedies aren't for everyone though and obviously we all have unique health issues but I thought I'd share my journey if it helps. Xx

Hi Sarah. Have tried a few times to reply to Vmlat but they don't appear for some reason. Do you know why that could be? Thanks Debs P

Your last 2 messages have come through ️

Strange the main reply hasn't though

Have just pasted it in again but it just doesn't work

Hi Vmlat

How did the MDM go? I had a scc tumor on the back wall of the vagina removed and a radical hysterectomy last August. For me the margins still had VAIN3 plus it had gone into a sentinel lymph node ( which was removed along with 6 other negative ones) so they did VMAT external beam radiotherapy and brachytherapy as an adjuvant therapy. Although I ate quite well anyway, since the diagnosis I've been eating a lot more healthily, cut out sugar as far as possible and I take various natural supplements.

I'm 9 weeks post radiotherapy. Haven't had a follow-up MRI yet (one is due in April) but at the last one in November there was no evidence of disease. However I'm not sure it would detect VAIN 3.

Try popping it in this reply maybe?