Good afternoon ladies. I haven't been on here in a while. So I was diagnosed with vaginal cancer in April. It was stage 3. It was on cervix, vaginal wall, and 3 lymph nodes. It did not go outside of pelvic wall. I had radiation and chemo. I had brachytherapy in July. I went back to work on August 1st. The radiation was the most difficult part to me. The skin irritations and I had severe abdominal pain off and on. God brought me through it though! The doctor said I responded very well to treatment and the scan in July did not show tumor anymore. I go back on October 2nd for new PET scan. Doctor said this will determine if additional chemo will be needed. I believe I'm all clear. I asked about immunotherapy. She said she didn't think I needed it now.
So as far as sex. LAWD it was painful. They recommended 3 days a week or use the dialator. It is getting better now. It takes a while just in case someone reading this is dealing with that too. Anyway, I welcome some feed back.
Hi Healed
Well, this is really good news to read and will be very helpful for ladies in the group! Thank you for sharing your update with us.
The dilators can certainly help with keeping things open, especially for anyone not in a relationship, but it’s good to know that things are going well for you. I hope you continue to keep well, and that you get good results from your next PET scan.
Sarah xx
Hi healed. Good to hear you are back at work already. Can I ask what your experience was of the radiotherapy? They want me to have external pelvic radiotherapy but I am so reluctant due to stated side effects to bowel, bladder, vagina and possiblelymphodema. I am also trying to treat it naturally at present. Am trying to find more positive experiences online, but alas they seem to be very negative. Hence why I've stumbled across this support group. Many thanks in advance
I definitely agree with Healed - please don’t let negative internet reading frighten you out of treatment. It is recommended to you by your doctors because it gives you a good chance of being very successful.
I’m concerned that you are trying to treat this naturally, especially since you’ve said you had cancer in a lymphnode, and VAIN3 which did not have particularly good margins on removal. Those are extra risks for you which mean pelvic radiotherapy is a sensible idea, and every person is unique in what side effects you may or may not get.
Sarah xx
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