Hi . Anyone else here struggling to get excited about Christmas? I thought I was then on Wednesday after treatment i wished the nurses a happy Christmas, A’s next treatment will be early jan, then as I walked out, this overwhelming sadness hit me and I had a good cry. Not really looking forward to celebrating and spending time with family.
Hi . I think it’s the what seems to be endless immunotherapy treatments, and the thought that it’s continuing into next year, or have I got that wrong. I know when I started Pembrolizumab in April 2016, that’s how I felt by Christmas 2016, and I couldn’t wait to have a break. My first Christmas after diagnosis was the worst, as I was on Dabrafenib and that dictates exactly what time you should eat, taking the tablets 12 hours apart and no eating or drinking I think it was 2 hours before and one hour after. This Christmas my treatment should fall in Christmas week, blood on Christmas Eve moved from Christmas, and treatment on the 27th, but there can be some flexibility. I went back onto Pembrolizumab in June 2018 and apart from missing one dose this March due to surgery I’m still on it. It seems so endless. I am having a break at Christmas, I’m not going back in til 15/1. I was going to have a double dose to miss out Christmas, but an error was made and the pharmacy only had the usual amount made up. I’ve been given the go ahead to miss a dose though, normally I wouldn’t contempt’s that but I just need a break and the consultant has ok’d it. I had biopsy results from my enlarged lymph node this week, no surgery required as the biopsy has shown my metastatic melanoma in the node was withering.
Today ive put the tree up but I haven’t written any Christmas cards yet, I better get on with it as last day for posting 2nd class is Wednesday. My one daughter will be home in less than a week now, so perhaps Christmas is about to start.
Take care KT
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