TNBC, Grade 3 under 50 1 +ve lymph node

Hi Karend78 

I am sorry you have been diagnosed with grade 3 tnbc. It’s my understanding it can happen at any age - I am on a patient advisory panel for tnbc where almost all the other women are under 50. It’s not at all related to oestrogen levels - it has no oestrogen receptors. I hope you are tolerating the chemo well. TNBC is tricky is one of my oncologist’s favourite expressions but I am still here and well despite probably being denovo metastatic at diagnosis in early 2022. I say probably because the secondary cancer wasn’t found until I had a CT scan for something else a few months later. 

Try not to worry about prognosis. A lot of the things you can find online are out of date. Plenty of people have good outcomes with TNBC although you will always find the horror stories. 

Hey Karend78 

I was diagnosed last November at 46 with grade 3 TNBC, although I have no node involvement so staging would be different to you (my bio in my profile has full details if you're interested). I knew a bit about TNBC prior to my diagnosis as although I was new to the breast cancer world, it wasn't my first cancer rodeo! When I was first told, I was terrified because, as far as I was aware, it was a really bad type to have. The only well-known case I knew of hadn't ended well so I wasn't particularly inspired that mine would either.

Then when I got home, I did a search for TNBC survivors and came across Rosamund Dean. She is a journalist, stage 3, grade 3 TNBC survivor of over 5 years, diagnosed at 40 in 2021, and now a personal hero of mine. I've included a link below to the Breast Cancer Now podcast episode on YouTube where she shares her story and this really helped me so much in my early days and does so still now. The podcast also opened up a whole world of other breast cancer resources to me so I really hope it helps.

All the best. x

https://www.youtube.com/watch?v=IqthnK6aGUI

Thank you so much for the advice and pointer I will watch / listen to the episode! very much appreciated x

Hi,

I was diagnosed in December, also under 50. TNBC breast cancer stage 2. It wasn't the type of cancer they were expecting it to.

They did say because it isn't hormone driven, and because it can be aggressive they do need to hit is hard, but they never said it wasnt treatable. 

I finished chemotherapy 6 weeks ago. Exactly the same chemo as you but I had 4 rounds of EC & i am having immunotherapy as well for a year. 

I am 1 week post surgery, lumpectomy and they took 8 lymph nodes for testing as precaution. If the biopsy results are clear then they have recommended between 1 to 3 week course of radiotherapy which I will do. 

Its so scary, how depending on location everyone has different treatments, responses.

Hope your treatment is going well so far.