Recurrence diagnosis

Hi Una26 

I am so sorry you are here, but I hope I can offer some hope. I had early stage TNBC in 2022 with no lymph node involvement and a secondary lesion was found in my liver before I finished primary treatment. That was picked up on a CT scan done for other reasons and I went on to have a PET-CT. So mine was not a recurrence but probably de novo metastatic with spread through blood not lymph. Initially I assumed the worst as googling stats for stage 4 TNBC doesn’t produce happy reading. But here I am. I have been in remission since late 2023 and not on any treatment since the clean up liver ablation I had in early 2024.

So please don’t assume the worst even if your PET scan finds more problems. 

Thank you so much for replying.

that does help actually. Im in a slightly better place today. My PeT scan is booked for Saturday morning so less that 48 hours away.

I am going to meet this head on and fight it. I am reading up on immunotherapy and it’s a positive read. 
Tjank you for sharing your experience 

Una x
 

Hi Una26 

I was treated with immunotherapy (pembrolizumab). Your tumour needs to have a certain amount of PD-L1 protein for the treatment to be offered. It worked well for me albeit with some complications.