Hello dear community
I am from Switzerland and joined this group, because I need to be around people who know the "real" feeling of getting the diagnose. On Monday I got the devastating news, that the tnbc I've conquered 6 months ago, came back: But not locally, not even axiliar lymphnodes are involved. It spread directly to the lungs. Several spots on both sides. Operation or radiation not possible at the moment. We still wait for tumor biology.
I already spoke to many women who responded well to the treatment and fought the recurrence and the mets. I don't want false hope, but I also KNOW, that there are women who don't just live a few years more with it. No, There are women who actually won the fight and are in remission. I ust turned 40 and I feel such a strong will to live for me and for my husband and our live together. Oncologist suggests Trodelvy - I don't have any plan yet, but wanted to ask, if anyone here was or is in a similar situation and is doing fine?
Hugs and Thanks a lot! Daniela
Hi Daniela.S
I am sorry you have metastatic tnbc. I do too, although my tnbc is PD-L1 positive so pembrolizumab was my first line of treatment in the metastatic setting. If you click on my name, you can see my story. I have been living with this since 2022. I also never had lymph nodes involved.
Trodelvy is my next line of treatment, should I need it. There is a thread on our main Breast cancer forum about it, that has had a couple of updates today from people actively taking Trodelvy. Hopefully they can add to your knowledge.
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I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
