Good evening everyone, im
Sharon, age 52. I was initially diagnosed with Tnbc in Jan 2023, left breast and lymph nodes. I went thru 3 types of chemo, radio therapy, immunotherapy and lumpectomy and lymph node clearance, I was Ned at the end and have been fine for 4 years with clear mammograms until a few months ago, I started to get strange symptoms was falling over and knocking things over and my bladder just lost its function overnight, amongst other strange symptoms, and after seeing my doc I was referred for mri & ct scans with The Neuro team in July and they operated almost immediately, Unfortunately they found a brain tumour, also Tnbc, I went thru a craniotomy and they removed the tumour and were initially very confident that it had been fully removed. I was in hospital for weeks then 2 weeks in rehab, I lost my driving license and car, but was starting to get strong and been doing quite well, apart from the ongoing pain, and I’m just about to start physio as I’ve been left with left sided weakness, and i need a Walker to get about, then I had a repeat mri and I have been chasing and chasing the results, but I have had no follow up at All from neurology since I was released from hosp, and no results from the mri, and oncology decided they didn’t want to put me thru more chemo or treatments unnecessarily as they were confident it was all removed, we jump forward a few weeks and the symptoms are all back and after weeks of chasing neurology with no response at all, I finally had a call from the breast care nurses and ended up in the Bristol Royal infirmary on Friday night, a ct scan has shown more swelling and possibly re growth but they are not sure as it could still be more swelling from the surgery as I’ve been in terrible pain since the surgery but just no one has responded to my calls and emails, and I now need another mri to see whats going on, I just feel so let down and I am devastated to now be stage 4 and basically been handed a death sentence as my mri has not been reported on in a timely fashion, I have been given a not curable diagnosis now, with a terrible prognosis, I just feel so numb and I just don’t know where to start. I am hoping I will get a follow up call tomorrow from oncology, the bcn team advised me to put in a complaint with Pals on Friday night, but it all feels a little late for that now, and I have lost all confidence in the Neuro team and really feel like I’ve been so abandoned.
My husband of 20 years ran off with another woman out at the first cancer and I’ve not heard from him since, and my family have now all but abandoned me! I just keep being asked by family members about getting a power of attorney for them! I just feel like they are all waiting for a pay day! I’ve never felt so alone and abandoned in all my life.
Sorry to unload all of this but I just feel like giving up, but the strong side of me wants to keep fighting, just hoping for some words of wisdom and encouragement and advice really, I’m on my own apart from my 6 rescue cats and now I’m dreading having to try to re home my precious babies while I’m waiting for more bad news, and being pestered about my pension and life insurance! What a nightmare 
Wishing everyone well Sharon. hugs all round xx 
Hi sharon
Im so sorry about your condition and i cant say your situation i can relate too however you say your husband ran out on you after the 1st cancer i say good riddance as i lost my wife 5weeks ago to stage 4 metastatic melanoma which was in the brain and at the young age of 37 but i was with her every step of the way and would have done it for another 50 years if given the chance so for me speaks volumes of a man if he can do a runner in his wifes hour of need.your better off doing it solo.
As for your family and friends i feel for you as only when the chips are down do you realise peoples true colours.
But i wouldnt think about anything else other than yourself as you are in the biggest fight of your life and judging by your post you are ready to keep swinging and fighting.youve done it for so long anyway so you know no other way than to fight
So all the best and i am routing for you and again apologies i cant relate or give advice as i seen your post on the homepage and felt i wanted to tell you that you are strong and you can do this on your own 
