I need hope

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Hi,

My name is Emma and I'm 37 years old. I have been diagnosed with triple negative breast cancer, 2A. I have been able to remain quite positive until now. Today I had my appointment at guys and feel the weight of the world. 

I have got into my head and feel completely lost and hopeless because of this specific type of breast cancer. I am already sure in my mind, that it will reoccur somewhere untreatable and I won't survive. 

U haven't even got over this cancer yet but already I feel like I've seen the end. Please please please can someone else me with any positive stories. I am so so scared and I feel like I cannot breathe and have had two panic attacks already. 

I start chemotherapy with immunotherapy hopefully this week or early next week. I feel beyond lost and I want to know what I did that caused this. They didn't see any sign of lymph nodes being affected in my MRI but that was a few weeks ago and with it being so aggressive, maybe it has spread there now and then it's over. 

Please can someone help me. 

  • Hi Emma/ 

    You wanted a positive story, so here's one Slight smile

    I was diagnosed with TNBC in April 2022. I had a lumpectomy, followed by chemotherapy (because there were microdeposits in one sentinel lymph node) and radiotherapy and here I am completely recovered and living life to the full.

    Anne

    PS. Happy to share any specific experiences with treatment that you'd like to know

    ((hugs))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you so so much. I really do appreciate this. If we could follow each other on here and keep in touch that would be amazing. 

    If you could tell me some specific experiences that would be amazing and how best to monitor after remission. Thank you again so much. Your message means everything to me. 

  • When I was diagnosed immunotherapy wasn't given alongside chemotherapy. What chemotherapy will you be having and, if it's the same as mine, I can tell you my experience with it.

    Will you be having a lumpectomy or mastectomy and have they mentioned whether you'll be having radiotherapy or not?

    After my main treatments I then had six-monthly infusions of Zometa, which is a bisphosphonate, for three years and didn't have any side effects from that.

    I have a yearly mammogram and a yearly physical check-up with my oncologist, six months apart, so I feel happy with being checked every 6 months. Apart from that, if I'm concerned about anything I can speak to one of the breast cancer nurses.

    Right now you'll probably feel that you have a long road of treatment ahead but it's amazing how quickly it passes and then you can get back on with your life.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"