Hi I’m new to the group

Hi Lindsay Lou

Welcome to the forum and I am sorry to hear that you have been diagnosed with triple negative breast cancer.  Try to think that your plans for travelling are just postponed while you receive your treatment rather than gone belly up.  There is a process called cold capping which is supposed to help you keep your hair so have a discussion with your oncologist about having that done as part of your treatment.  However just be aware that cold capping does add extra time on to your treatment.  As you have been diagnosed with cancer you are considered to have a disability so you are covered under the Disability Act.

Try  to keep yourself busy while waiting for the results of your genetic testing by doing the things that you love to do.  If you have a Maggie's centre or another cancer centre near you why not call in or give them a ring to talk to someone about how you are feeling or you can ring the Macmillan helpline on 0808 808 0000. The helpline is open from 8am to 8pm seven days a week. And whatever you do don't google triple negative breast cancer as the information is years out of date.  Rely on sites like this one and Breast Cancer Now for your information.

Wishing you the best of luck with your test results and with whatever treatment your medical team put you on.

Best wishes

Daisy53

Thank you for responding Daisy53

i am just trying to look on macmillan and breast cancer now sites for my information regarding what’s coming next. 
I just can’t help worrying though, but I also expect everyone is like that when they first find out.

I will be asking about the cold cap when I go to see the oncologist. 

thanks again 

Hi Lindsay Loo,

Sorry to hear of your diagnosis - I also have TNBC. 

So when they told me my diagnosis, I was sent for some blood tests the same day, just because I was at the hospital and wanted get it out the way so you will be required to have blood test. I also had an echocardiogram and CT scan. 

Then I saw the oncologist a few weeks later. I would suggest you take someone with you as there is generally a lot of information given. He did a medical examination and went through genetic testing (this is another blood test - I was offered it as I hit quite a few of the points of those who generally get TNBC), he gave me a voucher to purchase a wig via NHS. 

They will also outline the plan. This varies for everyone. My plan was chemo for 6 months total. 12 infusions, once A week for 12 week and then 4 infusions, every 3 weeks. 

The cold capping was discussed more with the breast nurse originally and then when I went to have my first chemo, it was discussed further there. 

I saw my oncologist on a Tuesday and had my first infusion the following Monday but every where is different. 

Things will move now you have your diagnosis. 
I would tell your employer as soon as possible so they are able to support you. 

Due to my job role, the oncologist actually signed me off work for 6 months and they sort sick notes and everything so no need to worry about anything. However I do know someone who has continued working (with limits) but again, was provided with a sick note stating this. Again, everyone is different so there is no set rule if you get me. 

Have to do what is best for you.

Good luck on your journey. If you are struggling, maybe speak to your GP to see if they can offer any support. Again, I did and they were very supportive xx

Thank you for responding to my post. 

I’m going for a MRI scan tomorrow and waiting at the minute for further appointment/ letters.

i did tell my employer and yes he was very supportive.

Thanks for your advice

Darling girl, your hospital can supply you with a great wig. If possible go to a wig shop and try a few first. I have two from the Raquel Welch collection. Every time I am wearing it I always get told how amazing my hair is and then I tell them it’s not my hair they are so surprised. Wigs are not like the one my mum had to wear in the1970s. I did try the cold cap three times but as my hair became thinner each time it was more painful. Good luck with everything and try drinking pineapple juice when you are on chemo so refreshing and still tastes good. Xxx

Hi Thank you for the reply

Thanks for the tip on Pineapple juice I’ve also read that ice lolly’s work as well.

i have been looking at some wigs to be honest just to try and prepare myself.

 again ️