Hello,
I´ve only just found this forum as I originally posted, about a week or so ago, on the general breast cancer one.
I´ve been rcently diagnosed with triple X bc and have had the CT scan, nuclear medicine heart scan, blood analysis and am due the bone scan on Monday.
I´m seeing my oncologist for the 2nd time after getting the news tomorrow morning to get the results of these tests, and the plan at the moment is to start with chemo tomorrow afternoon.
I know this cancer is aggressive and more likely to return than other types of bc.
I veer from being hopeful to feeling a bit gloomy and overwhelmed by it all.
Thanks for reading.
Doria.
Hi Doria sorry you haven't had a response to your post. I don't know much about triple negative bc but I think the prognosis is still good. I think you are right in that it might be more likely to re occur than other types of bc but I'm sure I read somewhere that if it doesn't come back within 3 years that it means it's unlikely to.
I guess you should just be really vigilant in checking your breasts so if it does come back you catch it as early as possible as the earlier it's caught the better the outcome.
Your doctors and oncologist should be able to give better information than I am.
Wishing you all the best x
Only more likely to reaccur in 3 yrs then your chances are the same as a person who hasn’t had cancer unlike other forms of breast cancer which is 5 yrs so there is one positive.
treatment is aggressive but with the right attitude you can live your normal life so don’t be scared do talk to this forum as they are so helpful especially on a down day
Hi
I too have tbnc with lymph nodes affected. I am nearing the end of chemo and have an appointment for pre surgery 20th November.
My advice would be to not read about recurrence and survival rates and to just deal with the facts about your diagnosis and the aims of the treatment plan.
I have so far had 4 docetaxel Carboplatin once every twenty one days and 1 FEC. 28th October should be my last FEc. Chemo is different for everyone. Some suffer all the way through with more side effects. For me I had steroids and anti sickness pills for three days after. When they wear off I get about 4 days of feeling rubbish. Fatigue and sore mouth being the worst and everything tastes of cardboard. After that I start feeling normal again until the next cycle.
I Try to process everything one goal at a time. Mine was to get through the chemo. I am now switching to focusing on surgery and nothing else. When this bit is done I will think about radiotherapy and poss more chemo. Then bisphosphirates for 10 years. At some point I will be told it has all worked or not but I am not even thinking about it. At some point I will also be able to get back to some sort of normality, possibly next May June. Two chemo sessions have been put back a few days as the bloods you have two days before determine if you can have it or not. One was for low white cells. One was for low platelets.
I go outside everyday no matter how rubbish I feel. I go on long walks and do all the everyday stuff when I feel fitter between cycles. Me and my partner take days out at least once a week and I feel slightly blessed (weird) that I am home for my daughter's last year of school so I can help her with her GCSEs
You will have wobbles and that is fine too. Listen to your body and ask for help.
Please keep me updated with and good luck with your chemotherapy.
Xxx
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