TNBC Grade 3

Hi there, I was diagnosed with grade 3 TNBC in May and was given the option of chemo or surgery first (not sure why) and I opted for surgery as I just wanted rid of it. My tumour measured 17mm on ultrasound but was 25mm when removed. I had clear margins with no lymph nodes affected, I received these results 3 weeks after surgery and I am currently going through FECT chemo which I started in July x x

Hi Kismit

Thank you for sharing your treatment plan. I am a few weeks behind you.  I waiting 4 weeks for my results following my operation, which were the best I could have hoped for given the situation. 

My chemo is different to yours, I think, as mine is EC-P.  Maybe due to the grade, not sure.

My continued worry is no scan initially to see if was anywhere else in my body. Have to trust they are the experts and it wasn’t necessary. 

I wish you all the best with your treatment x x 

Hi Northernwomen, thanks for your reply. I realised after I had responded that you posted this a couple of months ago.

I'm so pleased to hear you had good news following your operation. 4 weeks is a long time to wait and the waiting is just awful isn't it, it sent me crazy!

I never had a scan either which I thought was odd but like yourself they said it wasn't necessary. I don't understand why chemo treatment differs either, there is a lot I still don't understand but we have to trust the experts:)

I hope your treatment is going OK, I'm getting very tired now and have 2 more to go x x x

Hi Kismit

Thank you for your reply :)

I’ve only had one chemo cycle and tiredness is the worse thing, apart from indigestion, which I don’t normally suffer, but plenty more chemo to come so this list could change. 

I tried the cold cap, but won’t be doing it again, so I guess hair loss will be another addition to my list. 

My very best wishes for the rest of your treatment, and yes, we must trust the experts  x x 

Hello Kismet my journey which started on 19th August sounds very similar to yours, I had surgery after biopsies as my cancer was 8mm on initial examination but 3 weeks later was 10mm so although a VERY small increase it was a 20% increase!!!

My treatment is 3 cycles of EC of which I had the first last Tuesday - so far so good only minor probs, followed by 3cycles of Docetaxel. Radiotherapy will then happen.

I hope your treatment goes really well and you stay as positive as possible. I found the waiting for appointments etc the hardest thing, once things are happening I can cope. 

Thank you for everyone’s input on here 

AitchB xxx

Hi

I was diagnosed last May with TNB cancer stage 3. I had 6 rounds of chemo which I had a good response to. Surgery in October to remove the tumour and all of the lymph nodes and 5 sessions of radiology end of January. Fortunately I am cancer free. 
I am going to be totally honest it has been a totally gruelling process and extremely tough but totally worth it. Try and stay positive there is light at the end of the tunnel. 

Hello I was diagnosed with TNBC end of last year and had lumpectomy to remove tumour  & 3 lymph nodes for analysis in Dec. My results took 2 weeks. There has to be time to get over the operation before starting chemo. I have been rebuilding my stamina by walking each day, its really helped me. I'm lucky my kids are grown up so only me & hubby at home. I still often have a sleep in the afternoon & am signed off from work. Keeping my mood positive is crucial to my progress I think.

I have an appointment with oncologist to discuss chemo treatment plan on 21st Jan.

There are lots of factors to decide wether you have surgery or chemo first. Best to discuss this with your breast care nurse or one of the Macmillan nurses on this site. I have found both really helpful.

Wishing you all the very best

Rose333 xx

What a lovely message. I have had my lumpectomy and will have oncologist meeting on 21st jan to discuss chemo. I'm in it for the long haul and like you say staying positive is crucial. xx