Hello, have just joined nearly three years after diagnosis!
August 2018 found lump in left breast. Biopsy diagnosed tnbc . Had lumpectomy in October 2018 to remove lump and lymph nodes, 6 were cancerous. 3 FEC then 11 taxol, should have been 12 but onco decided my bloods weren't up to any more chemo. 31 sessions of radiotherapy. Follow up, yearly mammograms, bloods taken every 6months, follow up appts every four months, which are just a "how are you". Only other follow up was a PET scan in May 2020.
I was 68 when diagnosed, vegetarian, non-smoker though did drink wine! Walk my dogs every day, though cant manage as far now.
I still have neuropathy in my fingers, but don't. notice it any more except when trying to do fiddly things. It took nearly two years for the residual pain in the breast (left) to clear completely, still feel it occasionally when stressed. I've not drunk alcohol since diagnosed and have a glass of carrot juice every day, plus I take vitamin D every two months high strength ampoule which my onco suggested . Not sure what's available in UK.
I'm in France but found this forum really useful throughout my treatment. So, I've joined, why now? I have a few niggles that I'm concerned about: pain in upper back and liver area so will have an ultrasound next Tuesday and I hope to be able to share a positive outcome (my GP thinks it could be strained muscle or pinched nerve).
Regards, Papeen.
Hi Papeen and welcome! Quite a few ladies with TNBC dalso post on the main BC forum, including someone called Lacomtekp , who had TNBc and lives in France as well. She was treated there and is 5 years post-diagnosis with some peripheral neuropathy as well. She's usually on tha 'awake'' thread.
Good morning,
Thank you for your messages. I'm unsure what to message now really, as I know that most of you are still going through difficult times.
In fact I cancelled the ultrasound as after a strong course of ibuprofen and rest the pain in my back and liver/rib area has now gone. I couldn't face any more medical procedures than I need (the ultrasound was an option that I'd asked for if the pain didn't resolve with pills and rest) . I can only say that, as we know, this will happen to us after treatment is finished, aches and pains that we wouldn't have worried about before Cancer can bring us crashing down again, what if.......
I thought that I might be able to offer help to others, but I've noticed that things have moved on/changed in treatment in the three years since I was diagnosed, plus I'm in France so there will be differences.
I can just wish you all the very best; read as many positive postings as you can find, they really help! X
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