Hi all. Triple Negative

Hello. I was diagnosed on Wednesday, so still in a total daze. I have an oncology appointment in a couple of weeks to discuss my Chemo after a MRI scan. Hugs to you. 

Sorry to hear that you too are in my position. What is your diagnosis? I am due scans in the next week or so too. Sounds daft but my biggest concern right now is that I have to go to the dentist. I hate it. But I know I have a dodgy tooth. Also just had my second Covid jab yesterday and have felt an ear infection for a while. Things you put off and put off now need sorting before Chemo. 

Have you been given a treatment plan yet? I have rough schedule of chemo 4-6months then surgery 6 weeks later then more chemo radiotherapy depending on outcome. 

Xx

Saw the consultant on Wednesday, awaiting a scan as I have anther area of concern behind the TN area. But am seeing the oncologist on 14 June ( my wedding anniversary) it just seems to be taking so long to get appointments through..

The consultant said.. Scan then 3 rounds of chemo another scan to check what's happening, see him again to discuss then another 3 rounds of chemo.. Then the op... Maybe radio too, but wouldn't know until after op. Sounds pretty similar to you.

Oh no can't your dentist see you... Or even the hospital dentist? 

I better call my dentist now, to try and get an appointment before I start... How are you finding Chemotherapy?

It gonna be a shit weekend here as I'm telling my older kids Sunday. My daughter has her final exam to hand in for University first. Dreading it.. Xx

Hi I haven't started the chemo yet. Just was advised to get any niggles sorted and chemo will find them and any infection will delay chemo. 

Happy anniversary. I think it's really important to still keep celebrating and where possible enjoying normal life. Have you been together long? 

I have a 20 year old at uni who I was dreading telling. He can be a little volatile with emotions. But he was ok. My daughter is 15 and was a little sad but now back to herself and we are all just getting on with life trying not to let this horrible crap rule. Weirdly my step son who is 34 probably took it the worst. We also have three more step sons to tell. My partner is going to see them this week too . Am sure your kids will be great. 

Let me know how you get on. 

My oncology is on 11th June with treatment scheduled for 2-3 weeks after. You are right it seems to take a long time in between. 

Fingers x for you this weekend and enjoy your anniversary week. 

So weird. Had a letter confirming diagnosis today. But....Er neg HER2+ nodes. Not sure what this means now. Calling nurse over weekend. Any ideas?

Have no idea. Call your Nurse to get her to explain... I've not recieved my letter yet. Have my scan booked now for 6th June, then oncologist appointment on the 14h. So moving forwards. X

That's good. No scan booking for me yet and my oncology app is on 11th. I think the letter is a mistake. Glad we are on the same time line. Will be good to bounce off each other. 

My name is Heidi by the way. 

Hello Heidi, I'm Niki.

I am only having a scan as my TN tumour is above something they can't see. So is to check it's nothing else to worry about. So I have "Trevor the tumour" and a free loader... Double bubble. Hiw are you coping? X

Oh ok.

Mine is called Barry White. I killed him the first time round by thinking he was dead six months prior so I can do it again. 

I'm having top half MRI and CT to make sure there isn't any anywhere else before chemo starts.I

lm not letting this take over my life. Facts only. I have a 15 and 20 year old so now it's all out in the open we are business as usual but know it's good Ng to be a tuff year. My partner is amazing and have great friends so plenty of support. 

How about you?