Hi

Hi Christina 

Yes I lost my hair while having EC (epirubicin and cyclophospamide) but it started to grow back whilst I was on paclitaxel and I had a head of hair again about 3 months after the chemo had ended.

Hi Christina 

I am sorry you have been diagnosed with TNBC. You are right in thinking that most people with TNBC are recommended to have chemo and that the treatments used for TNBC do result in hair loss. Your oncology unit will probably offer you the chance to cold cap if you wish. Success depends on hair type and the actual chemo - with EC, one of the drug combinations used with breast cancer - being a tough one for hair loss. I tried cold capping but my hair fell out within 3 weeks anyway. I was at that point wondering if I wanted to continue anyway as I had found it very uncomfortable and also didn’t like the idea of not washing my hair every day. It grew back perfectly well. A year later I had more chemo as a surprise secondary was found in my liver and it grew back perfectly well a second time. 

Hi Christina 

I have TNBC and started a course of adjuvant EC chemo to prevent recurrence on 24th April after having a lumpectomy in December. Unfortunately it was confirmed five days after starting the EC that the cancer has returned in the same place so I'll be starting a new neo-adjuvant treatment of different drugs this week to shrink the tumour.

As I have had the one dose of EC already, I am indeed losing my hair. It started shedding very lightly on day 12 and progressively increased in the following days so I decided on day 17 to shave it off to save the mess. This was the worst part for me as I went from having shoulder length hair to a grade 2 and the change was very dramatic. It's now day 26 and I'm still not completely bald but not far off. I'm doing better than I thought with it to be honest. While I wouldn't choose it as a permanent style change or anything, I've accepted it as an expected side effect of the treatment. And it's always great when others who've been through it tell you theirs grew back so thanks to latchbrook and Coddfish for their input.

Thank you to everyone who has commented, I appreciate it