Reoccurrence of TNBC

Hello,

My understanding of it is that as each year goes on the percentage of it reoccurring decreases.

My BCN said that I would be with her for 5 years after - lucky her ha!

Try not to think of reoccurrence and enjoy life :-) xx

There have been a number of large cohort studies of people whose TNBC has recurred where the median time to recurrence was around 2 years, ie half within 2 years and half longer than that. I was told it was unlikely to recur if I got through 5 years - sadly I found out very quickly that I did have secondary spread to my liver, probably there de novo. 

Thanks that is helpful.  I don't think about it but my annual meeting with my breast consultant brings things back.  Like you this is for 5 years since diagnosis which was February 22. 

I am sorry that your cancer returned.  One can never say never but keep to the positives.

Thanks for replying to my post

Hi, I’m a year on from diagnosis. I had 6 months of chemotherapy and immunotherapy before surgery and radiotherapy. Unfortunately I had no pathological response to the treatment therefore I have a high risk of reoccurrence, so now on clinical trial. Currently on IV every 3 weeks Pembro and 2 weeks on 1 off of oral chemotherapy Capecitabine.

I’ve not had a proper discussion with oncologist about reoccurrence only that I’m high risk. I have however read online that each year that passes reduces the risk of it coming back. I’m grateful to be getting preventative treatment and can’t imagine the worry once I finish treatment. Obviously I went to be over the treatment but then again going it alone is a scary thought.

What surgery did you have? Did they not gain clear margins? 

How long are you having preventative treatment for?xx

I had a lumpectomy and a SLNB. Yes I had clear margin and the 3 lymph nodes were clear of cancer. Having chemotherapy and immunotherapy before surgery allowed them to see how the tumour would react to treatment. For me I had no pathological response. The tumour did not shrink, at all. For this reason I am at high risk of reoccurrence. I don’t have the BRACA gene.

I have another 4 3week cycles of Pembro and Capecitabine then another 1 of Pembro. Then we’ll see after that. I will have that bone treatment but can’t remember what it’s called. 

So my tumour has been removed but they have concerns about reoccurrence. I was diagnosed with Stage 11 grade 3.

Oh gosh. This scares me. Mine had a partial response but I feel like it has grown since chemo has finished. 
They stopped the immuno for me due to a reaction but they’re not sure now whether it was chemo and not the immuno. 

I guess I will be high risk reoccurrence too. I don’t have the BRAC gene either. 

thank you. Good luck with your journey xx

Good luck to you also