Nearly out the other side

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Hi all

I was told I had cancer on 15th December 2023. And confirmed as Stage 3 TNBC a week later. This was a complete shock, I’d found a lump but just thought it would be a cyst. I started chemotherapy early February, I had 12 weeks of Paclitaxel and carboplatin (3 weekly immunotherapy) then EC every three weeks (4 lots) finally finishing at the end of June. I then had a wide local excision the beginning of August. I then had 19 sessions of radiotherapy starting in early October. I’m still having immunotherapy and I’ve got to have 4 teeth out so I can have Zoledronic every 6 months  

The point of my post is nearly 12 months ago I couldn’t see an end to this. It felt like it was a never ending nightmare, yes it was awful at times, but I got through it. There’s hope,it won’t feel like it at times but keep going. This place is really good for information and support. Love to all going through this journey xx

  • What a wonderful post. You are right, there is hope. I kept wondering how I was going to get through it and now all my side effects, but there's so much support from my doctor, gp, macmillan, family and friends. We can do this Muscle x

  • Hi.

    Congratulations on nearly finishing your journey! It seems I have the exact diagnosis as you 12 months later! Same stage and exact same treatment plan (though I may need mastectomy depending on genetic testing results).

    I am due my second session of PC tomorrow and although I am happy to be starting the journey it seems the end is a million miles away.

    I worry about the side effects of medication (more feeling poorly and weak rather than hair loss etc) as I am an active busy person and hate the thought of not being! Also of having little of a life for the next 12 months.

    Thank you for sharing your story, it gives me hope and makes me believe it is manageable! 


    Take care

    Keely xx

  • Hope your treatment is going well Keely and you don’t suffer too many side effects. I only struggled with tiredness when on EC, chemo never made me physically sick. I did get an annoying rash. It does feel like a long journey ahead, but I can’t believe that it’s been just over 12 months since I was diagnosed. Keep going lovely xx

  • Yes I wondered how I would get through such a long journey ahead but I did and so will you. Good luck xx

  • Thankyou, had a reaction today for my third which scared me a bit. Had to have cortisone so now I’m worried about the side effects of that and it making my heartburn worse!

    Hoping my insurance will cover a change to a “hypoallergenic” version next time Fingers crossed

    Glad you found it manageable and are doing ok!

    keely xx

  • I suffered with heartburn I got something off my GP for it, don’t suffer. Hopefully you can switch to one that doesn’t cause a reaction. I weirdly had a reaction on my 3rd infusion of Paclitaxel and carboplatin. I went really hot and they stopped it for a short while and restarted slowly. It’s odd as it never happened again thankfully. 

  • Wow such similar journeys so far! This was my third infusion too!

    I am On omeprazole 20mg twice a day and take gaviscon and painkillers when it’s bad but they’ve added famotidine now too.

    What did you have for indigestion? Any tips of what could help?

    Thanks again for your replies!

    Keely xx

  • Well done on getting through this. And staying positive

    i am on MY LAST EC. then surgery. So gives me hope 

    all the best. 

  • Yes oneprazole helped me too

    amazing for heartburn. 

  • Annoyingly it’s not really working for me and I’ve been on 20mg twice a day for around 6 weeks now.

    Nothing has even seemed to work for me. I am getting it bad for around 3 days after each weekly treatment.

    Did you just have omeprazole? What strength? X