TNBC Genetics Lumpectomy vs Masectomy

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Hi, I was diagnosed with Grade 1 TNBC and had one Lymph node that tested positive.

I am more than half way through chemotherapy and I am also having immunotherapy. I have been told that I can have a lumpectomy and a number of lymph nodes removed or opt for a mastectomy.

Since my diagnosis my Mum checked more frequently and she unfortunately found a lump and has now also been diagnosed with TNBC and she is undergoing treatment.

I had the genetic testing which came back negative.

I would like to know if any other people on this group have been diagnosed with TNBC and have a close relative (mother/daughter) who has also been diagnosed with TNBC too and the genetic test was negative?

My worry is that we could have a gene not yet detected and therefore I would be making the wrong decision not to have a mastectomy?

If anyone has been in a similar position please can you let me know what you decided to have (mastectomy or lumpectomy) and why you made that choice? Thanks

  • Hi SaraW

    Welcome to the forum and sorry to hear that both yourself and your mum have been diagnosed with triple negative.  While I haven't the experience you are looking for I noticed that you haven't had any replies yet so I thought I reply to you anyway to welcome you to the community.  I suggest that you also join the breast cancer group and ask your question there as well as it's a much busier forum than this one.  There are plenty of ladies with triple on that forum as well.

    Wishing you and your mum the best of luck with your treatments.

    Best wishes

    Daisy53

    Community Champion Badge

  • Thank you Daisy. I will repost on there Slight smile