Bit of a rant:
I was first diagnosed 29th August told ER negative 10mm cancer but nothing else I had a lumpectomy & SN removal on 18th October, found out on op day that my HER2 was negative. Had my post op on 27th found out my PR was also negative, so now know I'm triple negative. Told node was clear, cancer turned out to be16mm but lateral margin were not clear so I need a further op, which I was really upset about but accepted it needed doing, given date of the 13th November.
Then everything started going down hill today, its all changed now and op is not going to be until 20th, I know its only a week but I have been suffering really bad with anxiety so much since diagnosis, My GP gave me a few low dose diazepam this afternoon, which has helped a little. Its just most people that have TNBC seem to have their surgery after chemo. My next post op is not until 1st December, so chemo probably won't be until Jan 24. Everything just seems to be taking so long, has anyone else had such long waits and things done this way around ?
Hi Alison218
I had my treatment for TNBC the same way round that you're going to have yours last year. Mine was found after a routine mammogram and was also small. I had a lumpectomy first along with removal of a couple of sentinel lymph nodes. One of the nodes had micro deposits so it was recommended that I had chemotherapy and radiotherapy.
I think it depends on the size of the tumour as to whether you have chemo first or after. If the lump is large then chemo is used to shrink it before it's removed. If the lump is small then surgery is done first to remove it and the chemo is an adjuvant treatment to stop it coming back. Anyway, that's how I understand it.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
It was my surgeon who told me that I had TNBC and that there were a small amount of cancer cells in the lymph node.
I then had an appointment with the oncologist who said he thought I would benefit from having adjuvant chemo.
I wasn't offered genetic testing.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
