Genetic testing for tnbc

Hi Chaka

Welcome to the forum and I am sorry to hear that you were diagnosed with triple negative breast cancer.  I was diagnosed with triple negative breast cancer over three years ago and like you I didn't fit the more usual type of person getting triple negative.  I wasn't offered genetic testing either.  Have you had a chat with your breast care nurse about your worries?  If not give them a ring and they should be able to give you an answer.  Alternatively you could ask a Macmillan nurse in the "Ask a nurse" section of the website though you will need to wait a few days for an answer.  Here's the link to "Ask a nurse": Ask a Nurse .

Wishing you the best of luck with your treatment.

Best wishes

Daisy53

Thanks, I will do.

Hi Chaka

what cancers did your son and sister have? Some cancers are linked x

Hi,

Non- hodgkins lymphoma and testicular csncer. Not sure they are related to tnbc though, but very close family. Start my ec-t chemotherapy this morning so will try to have a word with a nurse.

Thanks Chaka

Hi Chaka 

As far as I’m aware they wouldn’t be related. But I’m not a medical professional. I hope your chemo went well this morning.

x

Thanks. I'll ask my oncologist next time I see him. X

I think NHS have a cut off age of 60 for genetic testing.  I just scraped through at 60 and found out I have a genetic mutation called PALB2 which has only been known about in the last 10 years.    You can have genetic testing done privately and think it might cost around £300.  

Thanks for this. I will look into it. X

Hi 

yes 60 is the cut off for NHS 

I was tested for BRACA 1 and 2, PALB2 and CHEK2.  If I can recall the name of the company that offers private testing I’ll let you know.  It might be Signatera but not sure.