Confirmed as TN today

Hi 

i was diagnosed with TN this week & it hit me like a bus…I cried a lot because it would have been ‘easier’ to have the other type of BC. I met with oncologist & my oncology nurse yesterday & she was very good. She said that thou TN is rarer that it can respond better to chemo than ‘normal BC’. I found the most scary thing that there is no ‘safety net’ of tablets etc for us afterwards but TNBC is less likely to come back after 5 years. The survival rate is still 90%. Wobbling is perfectly normal & I find myself fine one minute & crying the next. We can only put our faith in the medical teams that we have & try & think of this as a temporary blip in our life. Thinking of you. Please feel free to message me any time.

C x

Aww thank you so much Charl42, your message helps me get my head around the TN label I feel that’s been slapped onto my forehead. I guess having been initially told it’s unlikely to be BC, and then having it confirmed as TNBC, I just think I’m that unlucky, I’m probably in the 10% who won’t survive. I’m usually so optimistic, but struggling to think positively atm. I keep going back to the notebook where I’ve listed the facts, it’s 15mm and not obvious in my lymph nodes. I have to believe I’m going to be ok - I’m literally constantly fighting with my own thoughts. I’m so tired, feel like I’ve crashed this week, two weeks since initial diagnosis.  

I’m seeing the oncology gang next week, find out what delights they’ve planned for me. Once that starts, I’ll be able to feel I’m taking a step towards getting my life back. 

Please do stay in touch, sending lots of love to you xx

Hi there, sorry you find yourself here.

I was diagnosed with grade 3 TNBC in April and I too feared the worst but it is very treatable. The worst thing I did was Google as most of the information is out of date and its given a poorer prognosis compared to other types due to there being no targeted therapies but it still has a good survival rate. I am on a support group on Facebook and there are many women on there who are 10 and 15 years in the clear from TNBC and they are thriving.

I wish I had never googled and just listened to the experts as they have all been very positive throughout my journey and told me the odds of surviving are well in my favour but I still worry, its only natural, its a dreadful shock.

Sending you love and hugs x

Thank you Kismit, I am dreading the next few months but feel reassured there are many women who are 10-15 years clear from TNBC.  

Sending you love and hugs back

Hi

I have only just seen this. Sorry you are here. I am guessing you would have started treatment by now or had surgery. 

I have TNBC 85mm and in my lymph nodes so in that respect you are in a good position. I am very positive that my outcome will be good as my MDT are confident it will be. 

I hope as I found, that once the treatment plan is in place and gets started, you will begin to feel better as I do. 

Good luck xx