Hi. My mother inlaw, has been diagnosed with TNBC stage 4 and it has spread in to lungs. she is under going Chemotherapy and immunotherapy. Since day one she has had very bad and painful water retention and an awful rash all over her skin. The oncologist has given her water retention tablets and also some steriod cream, but it hasn't touch it. She is doing all the right stuff, no salt, drinking water, elevation of legs, not standing for long periods. Also apply creams, she is using E45, she has tried others but she keeps going back to E45.
Yesterday she went to see the surgeon re putting a port in so she can have her treatment through that, as they are finding it hard to find a vein. BUt he said he wouldn't operate and put port in as her skin is that bad and water retention is bad.He said she needs to go back to Oncologist and get her skin/water retention treated, her oncologist has seen her skin and eveytime he says its normal. If it was noraml why isn't she able to have the port? One nurse said she has never seen anyone like her before re her skin.
Has anyone else had this before, she is in so much pain in the legs and her skin is on fire. She is really down.
Any advice would be appreciated xx
Hi and welcome to the online community
I'm sorry to read how much pain your mother-in-law is in and I'm hoping that since writing this things are moving forward.
I don't have any experience to share but I noticed that you hadn't had any replies to your post yet. I hope you don't mind me suggesting that you also post this message in the main breast cancer group as it's more active than this group.
You might also like to join and post in the secondary breast cancer group, as you've said that your mother-in-law's cancer has spread to her lungs, as there may be people in that group who've experienced the same problems. If this is something that you'd like to do just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post questions in the same way as you did here and join in with existing conversations by clicking on 'reply'.
When you have a minute, it would be really useful if you could pop something about your mother-in-law's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
