zoledronic acid

FormerMember
FormerMember
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What do you think about this? I dread damaging my teeth and jaw and its only a small % improvement statistically in life expectancy if I undergo this treatment. Should there be bone tests first to see how strong my bones are? Please tell me your experiences and help me decide.

I have tnbc, tumour removed, having radiotherapy next week, not choosing chemo, age 71.

  • FormerMember
    FormerMember

    I had a mastectomy last year, followed by chemo and radiotherapy and still need the Zolendronic acid.  My dentist will not give me the go ahead until I have my dental treatment. My teeth are not great, and I have to have 14 teeth removed, which is happening next Friday.  I too have been wondering if it is worth it, as the percentage quoted is 3.5%, and my oncologist said when asked if it worth it, "it is your decision". Would rather he just said you must have it, full stop! I suppose at the end of the day, we do anything to prolong our life!

  • FormerMember
    FormerMember

    Hi 

    I was diagnosed with a 34mm tumour in November  had a mastectomy in December and had chemo, 4 rounds of TC, during lockdown but I had no radiotherapy due to a previous stroke. During chemo 4 teeth loosened and fell out but I have now recovered from that.  I have had my first Zolendronic treatment 1 month after chemo. I felt fluish for four days and for about a week after that had aches and pains in my bones but that has now gone. I decided to have chemo, during lockdown, and although it was very hard, I took it  because there was no alternative for me after the mastectomy. I must say I now feel much better after it. I too was told it was my choice and I was not able to have the dental check but they looked at my records and gave me the choice. I chose the Zolendronic treatment because I felt it gave me the best long term chance. It’s very difficult to make these decisions and you know what’s best for you. They also say that the risk of jaw problems is small. Since then I have also developed slight deafness in my left ear which I think may be due to wax buildup but I’m checking this out with my GP next week. I don’t know if sharing my experience will be of any help but I know the issues you face and I feel each one of us must do what we feel is right for us at that particular time. I’ve now reached ta stage where I can look back with some objectivity and can see in pictures of then and now just how ill I was. My hair is growing back white and curly and I no longer need to wear my wig, my skin has replenished, my appetite has returned and I go for vey early morning walks when few people are out. I’ve even returned to work, albeit working from home teaching online. That’s been a whole new ball game. I’m 64 and have two years before I can retire and I’m just taking each day as it comes and making the best of it.