Hi
I started my first chemo session yesterday, and had Dexamethasone and piriton pre my AC infusions. Had the dex at ~3pm. Thankfully no reactions or issues other than a sore hand and cold head (thank you cold cap!). Have found I am wide awake all night! Can’t get to sleep at all! Now worried I have to take more Dex this morning
is this normal?? I know not to take it after 2ish, so this isn’t an issue. I’ve never been unwell prior to TNBC, so idea if this normal and if I should speak with the hospital about not taking more of it. I have domperidone and ondansetron too.
Hello Pipsqueak80,
I have Dexamethasone as part of my chemo. I'm having Decotaxel (T) as part of my FEC-T. I take 8 the day before, 8 on the day of chemo and 8 the following day. The first night I never sleep very well even though I've taken them morning and lunchtime - tend to just cat nap. The day of my chemo I'm just groggy but that could be the chemo, and I do sleep. The third day I get a red face and dry skin. Watch out for a mood dip at some point. Sometimes it is big and sometimes it isn't. The sleep does come back!
Hope this helps, xx
Oh, thank you so much! Oddly don’t feel tired, so hoping napping during day will happen. This would a great thing at Glastonbury! Not ok much post chemo.
T you also for the other tips, will keep an eye out, especially the mood dips.
Many thanks xx
Hi I have just finished my chemo I was the same as you not being able to sleep due to the steroids Thankfully the sleep returned after day 4/5 and didn’t get any worse during the treatment The first night was always the worst and I left something good to watch on the tv as I knew I wasn’t going to sleep
I also good the mood dips but they are also improving I also think the isolation of the Covid plays a big part . I live on my own and have been locked up since 23rd of March Even the dog is fed up now
These are strange times
Keep strong and stay safe xx
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