Hi my wife is fighting tnbc brain metastases and has had WBRT she is uncomfortable weary very much of the time and also she has confusion some time and I would appreciate any advice from any one who can help you troops have been through it she said to me how much more of this do I have to take, she is elderly but a fighting spirit is there any tips please
Hi and welcome to the online community although I'm sorry you've had to come and find us.
It's good that your wife has a fighting spirit but I'm sorry to hear that she's uncomfortable and weary for much of the time.
I don't have experience with this type of cancer but noticed that your post had gone unanswered. By replying to you it will push it back to the top of the page where it may be seen by someone who can give you the tips and advice you're looking for. I'm also going to 'tag' my fellow Community Champions GRANNY59 and into my reply to you as they have experience with breast cancer.
I hope your wife starts to feel more comfortable soon.
x
Hey I'm the newest champ, its nice to meet you, although it comes from such awful circumstances.
You are doing an amazing job by just being there. My Mum said that most of the time, the only thing that got her through her gruelling chemotherapy for her breast cancer, was me being there. So already, you're being such a comfort to her.
Radiation therapy can be very harsh as it is, but it must be extra difficult for your wife. You dont mention what discomfort your wife may be in, but you can get some advice from the Macmillan Help Line on 0808 808 00 00 or speak to your wife's medical team, oncologist, radiologist etc as they may be able to provide some help, either with medication or advice for your wife to do at home.
I really can understand how it effects you so much emotionally. You feel so horrible not being able to take it away, as that's exactly what youd like to do. And if the radiotherapy is working, as well as any other treatment, in times that she is struggling, just keep reminding her of how far she's come and what a star she's been already by getting through what she has already. It might sound silly because you think of course they know what they've been through, but in times of despair, it's easy to focus on the here and now, not how much of a tough cookie you've already been!
Just keep being there for her, and listening to how she feels. A good vent always helps my mum. And also take a little time for yourself to gather your own thoughts and emotions, as it does take a huge toll on you being the main carer, and we easily forget about ourselves.
I hope I've helped give you at least a little comfort. Your doing a brilliant job of being there, and supporting her through treatment, so keep going and keep being there. Do let us know how she gets on, and how treatment is going. And also check in any time that you yourself would like to vent, I know what that feels like! Haha. We are always here, and I wish your wife and yourself the best of luck, she is an absolute hero.
Best Wishes,
Alexia xx
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