Triple negative breast cancer at 28

Hiya if it makes you feel better i delayed the start of my chemotherapy by 3 weeks because i work at a Special school and was diagnosed 3 weeks before the summer holidays, i didn't want my kids worrying about me over summer so asked if i could start it the first week of the 6 weeks holiday. My chemo did a fantastic job, i had FEC-T.

I'm sure they would have mentioned to you if there was a risk with you leaving it.

Good Luck Tomorrow xx

Hey

I see my ongologist on friday so i am hoping that he can give me a approximate date of when i can start treatment. 

Were you scared when you made the decision to delay your treatment? 

Although i am yet to see my ongologist everyday i am scared that the lump will grow and the cancer will spread.

Sammy x 

Strangely enough no wasn't. as sad as it may sound i was thinking more of the kids i work with at school.

Didn't even think about it spreading or getting bigger. Maybe i'm lucky because i have 100% faith in my consultant. I also didn't know it was triple negative i only found that out a month ago, i suppose i was a bit naive and when the oncologist said "Oh this is an easy one no problem" he filled me with confidence and faith in him.

I never did feel scared i had been having treatment for 6 months and never worried about it, until the nurse told me what cancer i had and i did the stupid thing of googling which then scared me to death.

Reading stupid out of date information, wish i'd never looked.

I have never heard of triple negative breast cancer before as my mums cancer was caused by hormone tablets she was taking. When i first got the diagnosis i too made the mistake of googling it, never again will i do that.

Since finding out a week ago i have joined support groups and spoke to other women who has or is going through the same breast cancer as myself and since i have started to fully come to terms with whats happening to me.

Just wanted you to know I to had breast cancer at the age of twenty eight and I’m still here at sixty, I don’t know if it was triple negative,but I believe it probably was as I carry the brac2 gene ,hope they are testing you for that , be brave you will get through it ,

best wishes 

Sandra xx

Hi sandra

Knowing there are women out there who have had the same type of breast cancer as what im going through and knowing of their success at beating it  has helped me to believe that i too can become a success story and live to see my 60's and above.

I am getting tested for the brca 1 and brca 2 genes and 2 other genes to see if there is a mutation, shud get the results in may but i start my chemo on 11th april so onwards and upwards.

Sammy 

Sammy you have the perfect attitude to get you through yes onwards and upwards , be right there with you

sandrsxxc

Hay chick. I’m also going through the same shitty illness as you, I’m 27 and 33 weeks pregnant. If you ever wana chat... I’m here xx 

Hi Sammy (and everyone).

I am 30 years old and was diagnosed 3 weeks ago with triple negative breast cancer, likely stage 1, grade 3.
It seems it has been caught early, but it is an aggressive form - there are currently two tumours, one 9 mm and one 20ish mm both in the left breast.

I will be going for genetic testing over the next month or so to test for Bracca 1 or 2 or whether something else entirely which is always a possibility! Like a random case. However I do think it will be genetic as my mum had it (in her 50's) and I know her mum had it too...great genes! I also have 3 sister's under the age of 40 - so they will be tested as a result now too.

Due to my age I have been going through egg collection to freeze eggs, and will be taking a monthly injection to protect my ovaries. 
My first chemo is two weeks today.. I believe 6 rounds, then surgery then maybe a bit of radiotherapy.

The whole thing has been a huge shock... you don't expect it at this age and my life has gone on hold. Hen do's cancelled, holiday's cancelled, my partner of one year looking to become my main carer throughout the tough times - it was truly devastating news. 

I am petrified of losing my hair (granted health is far more important, but it is still important to me). I will be trying the cold cap and pray it works - does anyone else have experience of using this or thinking of using this?

I am also worried about a likely double mastectomy I will be facing due to this being genetic and that too, is terrifying. All in all a very scary 6 months ahead - not what I expected the first year of my 30's to be!

Allllll that being said... Breast Cancer in general is hugely treatable, and in particular for triple negative ones - they respond extremely well to chemo. most shrink by at least 50% and in a lot of cases, so small that you can't pick them up on a monitor anymore. Surgery is more of a precaution to prevent it coming back. my mums shrank to less than 50% and she had it removed (not a mastectomy, but she was too old for genetic testing... it hasn't come back yet). 

I am feeling extremely positive and I am very lucky to have a strong support network of friends, family, partner and even work have been brilliant - allowing me flexibility to work from home when I feel up to it.
I am more than confident I will battle it successfully and come out a stronger person in the end. Positive thinking really is key - it isn't a death sentence by any means, just a minor bump in the long road, so still laugh along the way were possible!!! Fun isn't out the question over this trying time. I have just been advised to take it easier than usual.

It's nice to know you aren't alone in these situations, wish you all the best of luck xxxxx

I had my first chemo session 2 weeks ago and was due to have my 2nd one on thursday but been told today that it is being delayed by a week  due to my white blood cell count being low, as anyone else had this