Triple Negative Breast Cancer

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Hello everyone,

Recently been diagnosed with TNBC… I have had the lump for a while but due to breastfeeding and lumpy boobs, didn’t rush to the doctors. 

Stupidly I went on Google and feel like I have been given a death sentence!! Can’t eat, can’t sleep and I can barely look at my little boy (1.5 yrs) without breaking down. I have my MRI etc tomorrow, but I’m petrified it’s spread. Prior to my scans, the plan is Chemo/Lumpectomy and then possible Rads.

My questions are;

Did anyone have pain in the breast and surrounding area? I’m scared it means it’s spreading. It’s not agony but it is mainly where the lump is. It seems to have got significantly worse since being diagnosed Weary 

Is it normal to have to wait 2-3 weeks to see the oncologist? Feel like the delay is too much to deal with, I am struggling to see a positive outcome. 

  • Hello Slight smile

    Thank you for your reply!

    Sorry you are in the same situation. It’s reassuring to speak to others that can relate. 

    Nothing seemed to be happening for ages then the last two weeks have been none stop appointments. Not finished with the scans yet but we do have a plan and I start chemo on Monday too. 

    How are you feeling about Monday?! I am scared but want to get rid of it so keen to get started. 

    What is your treatment regime?

    I am in North Yorkshire. Can’t even get a telephone appointment to get a sick note for work if needed, have to either wait 3 weeks for a GP appointment or queue for 3 hours at the walk in which I’m not willing to do! 

    Hope all went well with your picc line xx  

  • Hi ...

    Yep sorry to hear you have breast cancer ... I have TNBC in the left and after a MRI, DCIS negative found in the right.

    Two months of biopsies then treatment started. On 3rd infusion of Paclitaxel, I had a very bad reaction and chemo changed to Abraxane..... Which I had today.

    As for a sick note, you have cancer and are a priority  .... You only have to ask the receptionist to pass a message to your Dr regarding a sick note and they can email it to your phone .. just like my surgery did .... And then you can forward it on to whoever needs it.

    The waiting is horrendous for things to start happening and the last thing you want is more stress from a GP surgery.

     Possibly your GP has not been informed yet by your hospital that you have been diagnosed with cancer. I asked my receptionist to pass the information on to my Dr, off my own back and my Dr rang me and made an appointment for me to see her to discuss things she had not been made aware of yet.

    Once all my tests were done,  the hospital wrote to her (my GP) .... But I had already given her the heads up and importantly, my sick notes were already sorted.

    That's how I dealt with things and it worked for me.

    Wishing you all the best and here to help/listen.

    Xx

  • Hello, 

    exactly like you, petrified but defo keen to get started as I think it’s grown Disappointed relieved 

    as soon as I see the effects of the chemo (positive thinking here Joy) this will be better psychologically for me. 

    mine is every week for 12 weeks. 2 chemo and 1 immunotherapy - I’m not as good as these others as I don’t know how to spell them JoyJoy then 3 weekly for 3 months on EC. 
    I am praying I have a good reaction to it all. 

    What about you? 
    oh I’m in Lancashire / over the other side ha! 

    ask your consultant for a sick note. Mine didn’t hesitate. My GP surgery also do it via an online form then text it you. It’s great. 

    picc line was good - nurses have been today to check it. Are you having one fitted? 
    just had a shower and what a situation Joy as you can’t get it wet. Anyways, managed to do it 

    xx

  • Get yourself a plastic arm cover from Amazon Missy, they sort you right out for a shower. Just protects it all so the water can't get in. Mine was about 15-20 quid. Your docs might prescribe them in your area but they've stopped that here so had to buy one xx

  • My hospital gave me 3 arm covers .. I'm only a size 8 and they fit perfectly.

    Although I have a shower, I love a bath and soak with my arm above water.

    I suppose different areas do things slightly differently.